‘We don't know what tomorrow will bring’: Parents' experiences of caring for a child with an undiagnosed genetic condition

Overview of attention for article published in Child: Care, Health & Development, March 2021

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In the top 5% of all research outputs scored by Altmetric
Among the highest-scoring outputs from this source (#45 of 1,940)
High Attention Score compared to outputs of the same age (95th percentile)
High Attention Score compared to outputs of the same age and source (96th percentile)

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news: 2 news outlets
blogs: 1 blog

twitter: 40 X users
f1000: 1 research highlight platform

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So far, Altmetric has seen 48 X posts from 40 X users, with an upper bound of 93,304 followers.

Researchers shine a light on undiagnosed life “Some themes are shared with the experience of other families caring for children with complex needs…parents were doing all they could for their child in the context of a life of uncertainty” https://t.co/xIoe…

RT @AldissSusie: Happy to share our new paper: Parents experiences of caring for a child with an undiagnosed genetic condition TY to the pa…

RT @SWAN_UK: Check out this research paper looking into what it's like caring for a child with a syndrome without a name

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