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Previvorship Posting: Why Breast Cancer Previvors Share Their Stories on Social Media

Overview of attention for article published in Health Communication, May 2022
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • Good Attention Score compared to outputs of the same age (75th percentile)
  • Good Attention Score compared to outputs of the same age and source (77th percentile)

Mentioned by

twitter
8 X users

Citations

dimensions_citation
9 Dimensions

Readers on

mendeley
16 Mendeley
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Title
Previvorship Posting: Why Breast Cancer Previvors Share Their Stories on Social Media
Published in
Health Communication, May 2022
DOI 10.1080/10410236.2022.2074780
Pubmed ID
Authors

Mariah L. Wellman, Avery E. Holton, Kimberly A. Kaphingst

Abstract

Research on previvors, individuals with a genetic predisposition to develop hereditary breast and ovarian cancer but who have not yet been diagnosed with breast or other cancers, examines online information gathering and community support to alleviate uncertainty. However, research exploring online content published by previvors themselves is limited. We examined content published to Instagram and TikTok to explore how breast cancer previvors discussed their lived experience which included, but was not limited to, genetic testing, diagnosis with a BRCA1/2 pathogenic (i.e. risk-increasing) variant, the decision to undergo preventative measures like surgery and/or reconstruction, and how they cope after diagnosis and surgical procedures. In the findings, we explicate how many previvors feel a responsibility to share their authentic experience on social media in order to help others and mitigate their own feelings of uncertainty. This study offers a snapshot of how women are sharing breast cancer previvorship and building social connections with each other online.

X Demographics

X Demographics

The data shown below were collected from the profiles of 8 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 16 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 16 100%

Demographic breakdown

Readers by professional status Count As %
Lecturer > Senior Lecturer 2 13%
Lecturer 2 13%
Student > Bachelor 2 13%
Student > Doctoral Student 1 6%
Student > Ph. D. Student 1 6%
Other 0 0%
Unknown 8 50%
Readers by discipline Count As %
Business, Management and Accounting 3 19%
Linguistics 1 6%
Nursing and Health Professions 1 6%
Computer Science 1 6%
Psychology 1 6%
Other 1 6%
Unknown 8 50%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 6. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 30 June 2022.
All research outputs
#5,612,714
of 23,577,654 outputs
Outputs from Health Communication
#467
of 1,644 outputs
Outputs of similar age
#107,851
of 442,106 outputs
Outputs of similar age from Health Communication
#9
of 40 outputs
Altmetric has tracked 23,577,654 research outputs across all sources so far. Compared to these this one has done well and is in the 76th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,644 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 14.1. This one has gotten more attention than average, scoring higher than 71% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 442,106 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 75% of its contemporaries.
We're also able to compare this research output to 40 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 77% of its contemporaries.