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Collaborative design of a health care experience survey for persons with disability

Overview of attention for article published in Disability and Health Journal, January 2017
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Article details
Title
Collaborative design of a health care experience survey for persons with disability
Published in
Disability and Health Journal, January 2017
DOI 10.1016/j.dhjo.2016.12.022
Pubmed ID
Authors
Abstract

When assessing results of health care delivery system reforms targeting persons with disability, quality metrics must reflect the experiences and perspectives of this population. For persons with disability and researchers to develop collaboratively a survey that addresses critical quality questions about a new Massachusetts health care program for persons with disability dually-eligible for Medicare and Medicaid. Persons with significant physical disability or serious mental health diagnoses participated fully in all research activities, including co-directing the study, co-moderating focus groups, performing qualitative analyses, specifying survey topics, cognitive interviewing, and refining survey language. Several sources informed survey development, including key informant interviews, focus groups, and cognitive testing. We interviewed 18 key informants from key stakeholder groups, including disability advocates, health care providers, and governmental agencies. We conducted 12 total English- and Spanish-language focus groups involving 87 participants (38 with physical disability, 49 with mental health diagnoses). Although some details differed, focus group findings were similar across the two disability groups. Analyses by collaborators with disability identified 29 questions for persons with physical disability and 38 for persons with mental health diagnoses. After cognitive testing, the final survey includes questions on topics ranging from independent living principles to health care delivery system concerns. The Persons with Disabilities Quality Survey (PDQ-S) captures specific quality concerns of Massachusetts residents with physical or mental health disability about an integrated health plan. PDQ-S requires further testing elsewhere to determine its value for quality assessment more generally and to other populations with disability.

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X Demographics

X Demographics

The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley demographics

Mendeley demographics

The data shown below were compiled from readership statistics for 70 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Geographical breakdown
Country Count As %
Unknown 70 100%

Demographic breakdown

Readers by professional status
Readers by professional status Count As %
Student > Master 12 17%
Researcher 9 13%
Student > Ph. D. Student 8 11%
Student > Doctoral Student 4 6%
Student > Bachelor 4 6%
Other 16 23%
Unknown 17 24%
Readers by discipline
Readers by discipline Count As %
Nursing and Health Professions 11 16%
Medicine and Dentistry 11 16%
Social Sciences 9 13%
Psychology 7 10%
Biochemistry, Genetics and Molecular Biology 2 3%
Other 8 11%
Unknown 22 31%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 2. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 22 October 2017.
All research outputs
#19,046,325
of 29,353,077 outputs
Outputs from Disability and Health Journal
#663
of 942 outputs
Outputs of similar age
#257,102
of 431,949 outputs
Outputs of similar age from Disability and Health Journal
#15
of 21 outputs
Altmetric has tracked 29,353,077 research outputs across all sources so far. This one is in the 33rd percentile – i.e., 33% of other outputs scored the same or lower than it.
So far Altmetric has tracked 942 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 14.5. This one is in the 26th percentile – i.e., 26% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 431,949 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 38th percentile – i.e., 38% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 21 others from the same source and published within six weeks on either side of this one. This one is in the 28th percentile – i.e., 28% of its contemporaries scored the same or lower than it.