| Title |
Data quality assurance and control in cognitive research: Lessons learned from the PREDICT‐HD study
|
|---|---|
| Published in |
International Journal of Methods in Psychiatric Research, February 2017
|
| DOI | 10.1002/mpr.1534 |
| Pubmed ID | |
| Authors |
Holly James Westervelt, Rachel A. Bernier, Melanie Faust, Mary Gover, H. Jeremy Bockholt, Roland Zschiegner, Jeffrey D. Long, Jane S. Paulsen, The PREDICT‐HD Investigators, Coordinators of the Huntington Study Group |
| Abstract |
We discuss the strategies employed in data quality control and quality assurance for the cognitive core of Neurobiological Predictors of Huntington's Disease (PREDICT-HD), a long-term observational study of over 1,000 participants with prodromal Huntington disease. In particular, we provide details regarding the training and continual evaluation of cognitive examiners, methods for error corrections, and strategies to minimize errors in the data. We present five important lessons learned to help other researchers avoid certain assumptions that could potentially lead to inaccuracies in their cognitive data. |
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Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 1 | 100% |
Mendeley demographics
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 33 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
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| Student > Bachelor | 3 | 9% |
| Student > Ph. D. Student | 3 | 9% |
| Student > Master | 3 | 9% |
| Librarian | 1 | 3% |
| Other | 5 | 15% |
| Unknown | 12 | 36% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 4 | 12% |
| Psychology | 4 | 12% |
| Medicine and Dentistry | 3 | 9% |
| Mathematics | 2 | 6% |
| Computer Science | 2 | 6% |
| Other | 5 | 15% |
| Unknown | 13 | 39% |