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Consent and the ethical duty to participate in health data research

Overview of attention for article published in Journal of Medical Ethics, January 2018
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (95th percentile)
  • High Attention Score compared to outputs of the same age and source (87th percentile)

Mentioned by

blogs
2 blogs
policy
1 policy source
twitter
41 X users

Readers on

mendeley
130 Mendeley
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Article details
Title
Consent and the ethical duty to participate in health data research
Published in
Journal of Medical Ethics, January 2018
DOI 10.1136/medethics-2017-104550
Pubmed ID
Authors
Abstract

The predominant view is that a study using health data is observational research and should require individual consent unless it can be shown that gaining consent is impractical. But recent arguments have been made that citizens have an ethical obligation to share their health information for research purposes. In our view, this obligation is sufficient ground to expand the circumstances where secondary use research with identifiable health information is permitted without explicit subject consent. As such, for some studies the Institutional Review Board/Research Ethics Committee review process should not assess the practicality of gaining consent for data use. Instead the review process should focus on assessing the public good of the research, public engagement and transparency.

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Timeline Attention over time Attention Score history
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Activity
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X Demographics

X Demographics

The data shown below were collected from the profiles of 41 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley demographics

Mendeley demographics

The data shown below were compiled from readership statistics for 130 Mendeley readers of this research output. Click here to see the associated Mendeley record.
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Geographical breakdown

Geographical breakdown
Country Count As %
Unknown 130 100%

Demographic breakdown

Readers by professional status
Readers by professional status Count As %
Student > Ph. D. Student 16 12%
Researcher 14 11%
Student > Bachelor 13 10%
Other 10 8%
Student > Master 10 8%
Other 24 18%
Unknown 43 33%
Readers by discipline
Readers by discipline Count As %
Medicine and Dentistry 18 14%
Philosophy 14 11%
Nursing and Health Professions 12 9%
Social Sciences 10 8%
Computer Science 6 5%
Other 20 15%
Unknown 50 38%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 42. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 02 November 2020.
All research outputs
#1,239,153
of 33,738,238 outputs
Outputs from Journal of Medical Ethics
#277
of 4,178 outputs
Outputs of similar age
#22,492
of 492,484 outputs
Outputs of similar age from Journal of Medical Ethics
#4
of 33 outputs
Altmetric has tracked 33,738,238 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 96th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 4,178 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 21.7. This one has done particularly well, scoring higher than 93% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 492,484 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 95% of its contemporaries.
We're also able to compare this research output to 33 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 87% of its contemporaries.