Recommendations for Improving the Quality of Rare Disease Registries

Overview of attention for article published in International Journal of Environmental Research and Public Health, August 2018

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In the top 25% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (92nd percentile)
High Attention Score compared to outputs of the same age and source (87th percentile)

Mentioned by

policy: 3 policy sources
twitter: 21 X users
facebook: 1 Facebook page

video: 1 YouTube creator
guideline: 1 clinical guideline source

Readers on

mendeley: 210 Mendeley

So far, Altmetric has seen 25 X posts from 21 X users, with an upper bound of 76,482 followers.

RT @ClaudioCarta_4: September 26-30, the new edition of the International Summer School on #RareDiseases #Registries and #FARIfication of #…

September 26-30, the new edition of the International Summer School on #RareDiseases #Registries and #FARIfication of #data : https://t.co/cd1LDtUns4 Stay tuned, other #courses are coming❗ @istsupsan @DTaruscio @EJPRareDiseases @elixir_it @GOFAIRoffic…

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