@asdhominem @Spectrum @PeterNHess @promisNIH They did some validation of the parent proxy version as part of a larger battery (see below link), but I think it was only in those <18 (though including more cognitively impaired kids). But validation of …
Read more about how @DrGrahamHolmes developed the autism quality of life measure here: https://t.co/nOohcu6ruH
A Lifespan Approach to Patient‐Reported Outcomes and Quality of Life for People on the Autism Spectrum https://t.co/mecIVWK279 #Wiley #AutismResearch
@carolinehearst Original paper link here for those with access: https://t.co/haDfCghcji given the process they went through, I believe this issue would have come up. The scale is meant for all ages, which makes me think autistic people involved did not …