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Burden of caregiving and its repercussions on caregivers of end-of-life patients: a systematic review of the literature

Overview of attention for article published in Ciência & Saúde Coletiva, September 2015
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Article details
Title
Burden of caregiving and its repercussions on caregivers of end-of-life patients: a systematic review of the literature
Published in
Ciência & Saúde Coletiva, September 2015
DOI 10.1590/1413-81232015209.09562014
Pubmed ID
Authors
Abstract

Caring for a family member with an advanced and/or terminal illness can be a great emotional, physical and financial burden that has an impact on the quality of life of the caregivers. The scope of this study was to conduct a systematic review of the literature on the burden of caregiving, related factors and the consequences for family caregivers of advanced stage cancer patients or patients in end-of-life or palliative care. A search for scientific papers published in the EBSCO, Web of Knowledge and BIREME databases was conducted since records on this topic began in the databases through March 2014. Of the 582 articles found, only 27 were selected. The majority of the articles found that family caregivers were overburdened. Some studies found that the care-giving burden was associated with characteristics of the patients and their illnesses while, in other studies, it was associated with poor health of the caregiver, greater psychopathological symptoms (anxiety, depression, emotional distress) and with the development of complications in the grieving process. However, hope, social support, the ability of the caregiver to attribute meaning to the experience of caring and feeling comfortable with the tasks of caring were associated with lower levels of burden.

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Mendeley demographics

Mendeley demographics

The data shown below were compiled from readership statistics for 77 Mendeley readers of this research output. Click here to see the associated Mendeley record.
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Geographical breakdown

Geographical breakdown
Country Count As %
United States 1 1%
Brazil 1 1%
Unknown 75 97%

Demographic breakdown

Readers by professional status
Readers by professional status Count As %
Student > Bachelor 9 12%
Researcher 7 9%
Other 5 6%
Student > Master 5 6%
Student > Doctoral Student 4 5%
Other 12 16%
Unknown 35 45%
Readers by discipline
Readers by discipline Count As %
Medicine and Dentistry 12 16%
Psychology 9 12%
Nursing and Health Professions 7 9%
Social Sciences 7 9%
Decision Sciences 2 3%
Other 2 3%
Unknown 38 49%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 13 September 2017.
All research outputs
#22,759,802
of 25,374,917 outputs
Outputs from Ciência & Saúde Coletiva
#1,773
of 2,035 outputs
Outputs of similar age
#237,474
of 276,789 outputs
Outputs of similar age from Ciência & Saúde Coletiva
#34
of 39 outputs
Altmetric has tracked 25,374,917 research outputs across all sources so far. This one is in the 1st percentile – i.e., 1% of other outputs scored the same or lower than it.
So far Altmetric has tracked 2,035 research outputs from this source. They receive a mean Attention Score of 3.8. This one is in the 1st percentile – i.e., 1% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 276,789 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 1st percentile – i.e., 1% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 39 others from the same source and published within six weeks on either side of this one. This one is in the 1st percentile – i.e., 1% of its contemporaries scored the same or lower than it.