| Title |
Comparison of Informed Consent Preferences for Multiplex Genetic Carrier Screening among a Diverse Population
|
|---|---|
| Published in |
Journal of Genetic Counseling, July 2015
|
| DOI | 10.1007/s10897-015-9854-4 |
| Pubmed ID | |
| Authors |
Ashley Reeves, Angela Trepanier |
| Abstract |
Multiplex genetic carrier screening is increasingly being integrated into reproductive care. Obtaining informed consent becomes more challenging as the number of screened conditions increases. Implementing a model of generic informed consent may facilitate informed decision-making. Current Wayne State University students and staff were invited to complete a web-based survey by blast email solicitation. Participants were asked to determine which of two generic informed consent scenarios they preferred: a brief versus a detailed consent. They were asked to rank the importance of different informational components in making an informed decision and to provide demographic information. Comparisons between informational preferences, demographic variables and scenario preferences were made. Six hundred ninety three participants completed the survey. When evaluating these generic consents, the majority preferred the more detailed consent (74.5 %), and agreed that it provided enough information to make an informed decision (89.5 %). Those who thought it would be more important to know the severity of the conditions being screened (p = .002) and range of symptoms (p = .000) were more likely to prefer the more detailed consent. There were no significant associations between scenario preferences and demographic variables. A generic consent was perceived to provide sufficient information for informed decision making regarding multiplex carrier screening with most preferring a more detailed version of the consent. Individual attitudes rather than demographic variables influenced preferences regarding the amount of information that should be included in the generic consent. The findings have implications for how clinicians approach providing tailored informed consent. |
Mendeley readers
The data shown below were compiled from readership statistics for 42 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Spain | 1 | 2% |
| Unknown | 41 | 98% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 12 | 29% |
| Student > Ph. D. Student | 8 | 19% |
| Researcher | 5 | 12% |
| Student > Bachelor | 4 | 10% |
| Other | 2 | 5% |
| Other | 4 | 10% |
| Unknown | 7 | 17% |
| Readers by discipline | Count | As % |
|---|---|---|
| Biochemistry, Genetics and Molecular Biology | 10 | 24% |
| Medicine and Dentistry | 8 | 19% |
| Social Sciences | 5 | 12% |
| Agricultural and Biological Sciences | 3 | 7% |
| Psychology | 3 | 7% |
| Other | 4 | 10% |
| Unknown | 9 | 21% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 24 August 2016.
All research outputs
#15,381,416
of 22,883,326 outputs
Outputs from Journal of Genetic Counseling
#774
of 1,145 outputs
Outputs of similar age
#153,720
of 262,442 outputs
Outputs of similar age from Journal of Genetic Counseling
#12
of 19 outputs
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