| Title |
Supporting families with Cancer: A patient centred survivorship model of care
|
|---|---|
| Published in |
Familial Cancer, June 2015
|
| DOI | 10.1007/s10689-015-9815-y |
| Pubmed ID | |
| Authors |
Emily Victoria Craft, Caron Billington, Rory O’Sullivan, Wendy Watson, Nicola Suter-Giorgini, Joanne Singletary, Elizabeth King, Matthew Perfirgines, Annette Cashmore, Julian Barwell |
| Abstract |
In 2011, the Leicestershire Clinical Genetics Department in collaboration with Macmillan Cancer Support initiated a project called Supporting Families with Cancer (SFWC). The project aimed to raise awareness of inherited cancers amongst both healthcare professionals and the general public and develop a patient-centred collaborative approach to cancer treatment and support services. This paper describes the project's development of a range of community outreach events and a training scheme for primary healthcare professionals designed to improve familial cancer referral rates in Leicester. Following consultation with patients and support groups, a series of interactive 'medical supermarket' events were held in Leicester. These events focused on providing patients with a forum for sharing research data, information about diagnosis and treatments and access to support groups and other allied healthcare services with additional information being made available digitally via SFWC webpages and a series of short videos available on a YouTube channel. Qualitative and quantitative data presented here indicate that the SFWC medical supermarket model has been well received by patients and offers a patient-centred, holistic approach to cancer treatment. |
X Demographics
The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 1 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 28 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 28 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 8 | 29% |
| Student > Ph. D. Student | 5 | 18% |
| Researcher | 3 | 11% |
| Unspecified | 1 | 4% |
| Student > Bachelor | 1 | 4% |
| Other | 0 | 0% |
| Unknown | 10 | 36% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 6 | 21% |
| Social Sciences | 4 | 14% |
| Medicine and Dentistry | 4 | 14% |
| Engineering | 2 | 7% |
| Biochemistry, Genetics and Molecular Biology | 2 | 7% |
| Other | 2 | 7% |
| Unknown | 8 | 29% |
Attention Score in Context
This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 27 August 2016.
All research outputs
#20,338,537
of 22,884,315 outputs
Outputs from Familial Cancer
#480
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Outputs of similar age
#199,439
of 239,872 outputs
Outputs of similar age from Familial Cancer
#9
of 10 outputs
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