Title |
Moral Duties of Genomics Researchers: Why Personalized Medicine Requires a Collective Approach
|
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Published in |
Trends in Genetics, December 2016
|
DOI | 10.1016/j.tig.2016.11.006 |
Pubmed ID | |
Authors |
Shoko Vos, Johannes J.M. van Delden, Paul J. van Diest, Annelien L. Bredenoord |
Abstract |
Advances in genome sequencing together with the introduction of personalized medicine offer promising new avenues for research and precision treatment, particularly in the field of oncology. At the same time, the convergence of genomics, bioinformatics, and the collection of human tissues and patient data creates novel moral duties for researchers. After all, unprecedented amounts of potentially sensitive information are being generated. Over time, traditional research ethics principles aimed at protecting individual participants have become supplemented with social obligations related to the interests of society and the research enterprise at large, illustrating that genomic medicine is also a social endeavor. In this review we provide a comprehensive assembly of moral duties that have been attributed to genomics researchers and offer suggestions for responsible advancement of personalized genomic cancer care. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 2 | 29% |
United States | 1 | 14% |
Netherlands | 1 | 14% |
Canada | 1 | 14% |
Unknown | 2 | 29% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 4 | 57% |
Scientists | 3 | 43% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 2 | 2% |
United Kingdom | 1 | 1% |
Unknown | 96 | 97% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Ph. D. Student | 19 | 19% |
Researcher | 13 | 13% |
Student > Bachelor | 9 | 9% |
Other | 8 | 8% |
Professor > Associate Professor | 8 | 8% |
Other | 22 | 22% |
Unknown | 20 | 20% |
Readers by discipline | Count | As % |
---|---|---|
Biochemistry, Genetics and Molecular Biology | 23 | 23% |
Medicine and Dentistry | 20 | 20% |
Agricultural and Biological Sciences | 11 | 11% |
Philosophy | 6 | 6% |
Neuroscience | 3 | 3% |
Other | 15 | 15% |
Unknown | 21 | 21% |