Title |
Genomic medicine and data sharing
|
---|---|
Published in |
British Medical Bulletin, August 2017
|
DOI | 10.1093/bmb/ldx024 |
Pubmed ID | |
Authors |
Sobia Raza, Alison Hall |
Abstract |
Effective data sharing does not occur in the UK despite being essential for the delivery of high-quality genomic services to patients across clinical specialities and to optimize advances in genomic medicine. Original papers, reviews, guidelines, policy papers and web-resources. Data sharing for genomic medicine requires appropriate infrastructure and policies, together with acceptance by health professionals and the public of the necessity of data sharing for clinical care. There is ongoing debate around the different technical approaches and safeguards that could be used to facilitate data sharing while minimizing the risks to individuals of identification. Lack of consensus undermines trust and confidence. Ongoing policy developments around genomics and health data create opportunities to ensure systems and policies are in place to support proportionate, effective and safeguarded data sharing. Mechanisms to improve public trust. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 3 | 50% |
United States | 1 | 17% |
Unknown | 2 | 33% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Scientists | 3 | 50% |
Members of the public | 2 | 33% |
Practitioners (doctors, other healthcare professionals) | 1 | 17% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 65 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 11 | 17% |
Student > Ph. D. Student | 10 | 15% |
Researcher | 9 | 14% |
Student > Bachelor | 6 | 9% |
Student > Postgraduate | 5 | 8% |
Other | 10 | 15% |
Unknown | 14 | 22% |
Readers by discipline | Count | As % |
---|---|---|
Biochemistry, Genetics and Molecular Biology | 16 | 25% |
Social Sciences | 7 | 11% |
Computer Science | 5 | 8% |
Agricultural and Biological Sciences | 4 | 6% |
Medicine and Dentistry | 4 | 6% |
Other | 12 | 18% |
Unknown | 17 | 26% |