Title |
Demographic Differences in Willingness to Provide Broad and Narrow Consent for Biobank Research
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Published in |
Biopreservation and Biobanking, March 2015
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DOI | 10.1089/bio.2014.0032 |
Pubmed ID | |
Authors |
Altovise T. Ewing, Lori A.H. Erby, Juli Bollinger, Eva Tetteyfio, Luisel J. Ricks-Santi, David Kaufman |
Abstract |
This study examined acceptability of two biobank consent models and evaluated the impact of beliefs about privacy and genetic safeguards on acceptance. U.S. adults surveyed online in English and Spanish were randomly assigned to one of two scenarios examining acceptance of broad consent (n=1528), or narrow consent (n=1533). Overall, willingness to provide broad (76%) and narrow (74%) consents were similar. African Americans were as likely as white non-Hispanics to accept narrow consent (72% vs. 77%, p=0.35) but significantly less likely to accept broad consent (69% vs. 81%, p=0.004). Education, insurance, and blood donation history were also related to acceptance. Adjusting for beliefs about privacy and policy protections (Genetic Information Nondiscrimination Act, GINA), the effects of the variables were reduced. Respondents who drew comfort from GINA were more likely to support both consent (both p<0.001); those who believed it is impossible to maintain privacy were less likely to find both broad (p=0.04) and narrow models acceptable (p=0.02). Choice of consent model matters when engaging diverse populations in biobank research. Beliefs underlying concerns about privacy and genetic protections should be considered when constructing biobank protocols. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | 7% |
Austria | 1 | 7% |
Unknown | 12 | 86% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 9 | 64% |
Scientists | 3 | 21% |
Practitioners (doctors, other healthcare professionals) | 1 | 7% |
Science communicators (journalists, bloggers, editors) | 1 | 7% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Netherlands | 1 | 2% |
Unknown | 65 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 17 | 26% |
Student > Master | 11 | 17% |
Student > Ph. D. Student | 8 | 12% |
Professor > Associate Professor | 4 | 6% |
Student > Bachelor | 3 | 5% |
Other | 9 | 14% |
Unknown | 14 | 21% |
Readers by discipline | Count | As % |
---|---|---|
Social Sciences | 14 | 21% |
Medicine and Dentistry | 10 | 15% |
Nursing and Health Professions | 8 | 12% |
Philosophy | 3 | 5% |
Biochemistry, Genetics and Molecular Biology | 3 | 5% |
Other | 9 | 14% |
Unknown | 19 | 29% |