| Title |
The Benefits and Challenges of Preconsent in a Multisite, Pediatric Sickle Cell Intervention Trial
|
|---|---|
| Published in |
Pediatric Blood and Cancer, April 2016
|
| DOI | 10.1002/pbc.26013 |
| Pubmed ID | |
| Authors |
Mark Nimmer, Jason Czachor, Laura Turner, Bobbe Thomas, Ashley L. Woodford, Karli Carpenter, Victor Gonzalez, Robert I. Liem, Angela Ellison, T. Charles Casper, David C. Brousseau, for the sickle cell working group of the Pediatric Emergency Care Applied Research Network |
| Abstract |
Enrollment of patients in sickle cell intervention trials has been challenging due to difficulty in obtaining consent from a legal guardian and lack of collaboration between emergency medicine and hematology. We utilized education and preconsent in a pediatric multisite sickle cell intervention trial to overcome these challenges. Overall, 48 patients were enrolled after being preconsented. Variable Institutional Review Board policies related to preconsent validity and its allowable duration decreased the advantages of preconsent at some sites. The utility of preconsent for future intervention trials largely depends on local Institutional Review Board policies. Preeducation may also benefit the consent process, regardless of site differences. |
X Demographics
The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United States | 1 | 33% |
| Saudi Arabia | 1 | 33% |
| Unknown | 1 | 33% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 2 | 67% |
| Practitioners (doctors, other healthcare professionals) | 1 | 33% |
Mendeley readers
The data shown below were compiled from readership statistics for 20 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 20 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Bachelor | 6 | 30% |
| Researcher | 4 | 20% |
| Student > Ph. D. Student | 3 | 15% |
| Student > Master | 2 | 10% |
| Other | 1 | 5% |
| Other | 0 | 0% |
| Unknown | 4 | 20% |
| Readers by discipline | Count | As % |
|---|---|---|
| Pharmacology, Toxicology and Pharmaceutical Science | 4 | 20% |
| Medicine and Dentistry | 3 | 15% |
| Biochemistry, Genetics and Molecular Biology | 3 | 15% |
| Arts and Humanities | 2 | 10% |
| Nursing and Health Professions | 2 | 10% |
| Other | 1 | 5% |
| Unknown | 5 | 25% |
Attention Score in Context
This research output has an Altmetric Attention Score of 2. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 11 August 2016.
All research outputs
#15,517,992
of 25,374,647 outputs
Outputs from Pediatric Blood and Cancer
#2,536
of 6,047 outputs
Outputs of similar age
#163,635
of 313,909 outputs
Outputs of similar age from Pediatric Blood and Cancer
#28
of 90 outputs
Altmetric has tracked 25,374,647 research outputs across all sources so far. This one is in the 37th percentile – i.e., 37% of other outputs scored the same or lower than it.
So far Altmetric has tracked 6,047 research outputs from this source. They receive a mean Attention Score of 3.7. This one has gotten more attention than average, scoring higher than 57% of its peers.
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We're also able to compare this research output to 90 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 68% of its contemporaries.