| Title |
International Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access
|
|---|---|
| Published in |
The Journal of Law, Medicine & Ethics, January 2021
|
| DOI | 10.1111/jlme.12301 |
| Pubmed ID | |
| Authors |
Rebecca Branum, Susan M Wolf |
| Abstract |
Returning genetic research results to relatives raises complex issues. In order to inform the U.S. debate, this paper analyzes international law and policies governing the sharing of genetic research results with relatives and identifies key themes and lessons. The laws and policies from other countries demonstrate a range of approaches to balancing individual privacy and autonomy with family access for health benefit, offering important lessons for further development of approaches in the United States. |
X Demographics
The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 1 | 100% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 1 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 41 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 41 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Bachelor | 9 | 22% |
| Student > Master | 5 | 12% |
| Student > Ph. D. Student | 5 | 12% |
| Other | 3 | 7% |
| Lecturer | 2 | 5% |
| Other | 5 | 12% |
| Unknown | 12 | 29% |
| Readers by discipline | Count | As % |
|---|---|---|
| Social Sciences | 8 | 20% |
| Medicine and Dentistry | 7 | 17% |
| Agricultural and Biological Sciences | 4 | 10% |
| Biochemistry, Genetics and Molecular Biology | 2 | 5% |
| Business, Management and Accounting | 1 | 2% |
| Other | 7 | 17% |
| Unknown | 12 | 29% |