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Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

Overview of attention for article published in Journal of Law, Medicine & Ethics, January 2021
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • Among the highest-scoring outputs from this source (#26 of 957)
  • High Attention Score compared to outputs of the same age (97th percentile)
  • High Attention Score compared to outputs of the same age and source (90th percentile)

Mentioned by

news
2 news outlets
blogs
2 blogs
policy
3 policy sources
twitter
7 tweeters
wikipedia
1 Wikipedia page

Citations

dimensions_citation
525 Dimensions

Readers on

mendeley
303 Mendeley
citeulike
1 CiteULike
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Title
Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations
Published in
Journal of Law, Medicine & Ethics, January 2021
DOI 10.1111/j.1748-720x.2008.00266.x
Pubmed ID
Authors

Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness, Benjamin S. Wilfond

Abstract

No consensus yet exists on how to handle incidental findings (IFs) in human subjects research. Yet empirical studies document IFs in a wide range of research studies, where IFs are findings beyond the aims of the study that are of potential health or reproductive importance to the individual research participant. This paper reports recommendations of a two-year project group funded by NIH to study how to manage IFs in genetic and genomic research, as well as imaging research. We conclude that researchers have an obligation to address the possibility of discovering IFs in their protocol and communications with the IRB, and in their consent forms and communications with research participants. Researchers should establish a pathway for handling IFs and communicate that to the IRB and research participants. We recommend a pathway and categorize IFs into those that must be disclosed to research participants, those that may be disclosed, and those that should not be disclosed.

Twitter Demographics

The data shown below were collected from the profiles of 7 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 303 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United States 9 3%
Canada 4 1%
Germany 2 <1%
United Kingdom 2 <1%
Australia 1 <1%
Italy 1 <1%
Sweden 1 <1%
Unknown 283 93%

Demographic breakdown

Readers by professional status Count As %
Researcher 61 20%
Student > Ph. D. Student 48 16%
Student > Master 40 13%
Other 31 10%
Student > Bachelor 25 8%
Other 71 23%
Unknown 27 9%
Readers by discipline Count As %
Medicine and Dentistry 90 30%
Agricultural and Biological Sciences 39 13%
Social Sciences 27 9%
Psychology 22 7%
Biochemistry, Genetics and Molecular Biology 19 6%
Other 61 20%
Unknown 45 15%

Attention Score in Context

This research output has an Altmetric Attention Score of 43. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 26 December 2019.
All research outputs
#556,683
of 16,505,271 outputs
Outputs from Journal of Law, Medicine & Ethics
#26
of 957 outputs
Outputs of similar age
#6,478
of 259,687 outputs
Outputs of similar age from Journal of Law, Medicine & Ethics
#1
of 11 outputs
Altmetric has tracked 16,505,271 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 96th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 957 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.4. This one has done particularly well, scoring higher than 97% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 259,687 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 97% of its contemporaries.
We're also able to compare this research output to 11 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 90% of its contemporaries.