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Disease and patient characteristics in NP-C patients: findings from an international disease registry

Overview of attention for article published in Orphanet Journal of Rare Diseases, January 2013
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About this Attention Score

  • Above-average Attention Score compared to outputs of the same age (60th percentile)
  • Above-average Attention Score compared to outputs of the same age and source (60th percentile)

Mentioned by

twitter
4 tweeters
facebook
1 Facebook page

Citations

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95 Dimensions

Readers on

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112 Mendeley
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Title
Disease and patient characteristics in NP-C patients: findings from an international disease registry
Published in
Orphanet Journal of Rare Diseases, January 2013
DOI 10.1186/1750-1172-8-12
Pubmed ID
Authors

Marc C Patterson, Eugen Mengel, Frits A Wijburg, Audrey Muller, Barbara Schwierin, Harir Drevon, Marie T Vanier, Mercé Pineda

Abstract

Niemann-Pick disease type C (NP-C) is a rare neurovisceral disease characterized by progressive neurodegeneration and premature death. We report data recorded at enrolment in an ongoing international NP-C registry initiated in September 2009 to describe disease natural history, clinical course and treatment experience of NP-C patients in clinical practice settings.

Twitter Demographics

The data shown below were collected from the profiles of 4 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 112 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United States 2 2%
Japan 1 <1%
Brazil 1 <1%
Germany 1 <1%
Philippines 1 <1%
Unknown 106 95%

Demographic breakdown

Readers by professional status Count As %
Researcher 20 18%
Other 15 13%
Student > Ph. D. Student 14 13%
Student > Master 13 12%
Student > Bachelor 11 10%
Other 25 22%
Unknown 14 13%
Readers by discipline Count As %
Medicine and Dentistry 42 38%
Biochemistry, Genetics and Molecular Biology 14 13%
Agricultural and Biological Sciences 14 13%
Nursing and Health Professions 7 6%
Neuroscience 5 4%
Other 13 12%
Unknown 17 15%

Attention Score in Context

This research output has an Altmetric Attention Score of 2. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 21 April 2015.
All research outputs
#3,417,797
of 8,008,728 outputs
Outputs from Orphanet Journal of Rare Diseases
#530
of 1,108 outputs
Outputs of similar age
#111,139
of 298,408 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#21
of 53 outputs
Altmetric has tracked 8,008,728 research outputs across all sources so far. This one has received more attention than most of these and is in the 55th percentile.
So far Altmetric has tracked 1,108 research outputs from this source. They receive a mean Attention Score of 4.8. This one is in the 48th percentile – i.e., 48% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 298,408 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 60% of its contemporaries.
We're also able to compare this research output to 53 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 60% of its contemporaries.