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Palliative care for Parkinson’s disease: Patient and carer’s perspectives explored through qualitative interview

Overview of attention for article published in Palliative Medicine, September 2016
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (93rd percentile)
  • High Attention Score compared to outputs of the same age and source (80th percentile)

Mentioned by

twitter
51 tweeters
facebook
3 Facebook pages

Citations

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26 Dimensions

Readers on

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94 Mendeley
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Title
Palliative care for Parkinson’s disease: Patient and carer’s perspectives explored through qualitative interview
Published in
Palliative Medicine, September 2016
DOI 10.1177/0269216316669922
Pubmed ID
Authors

Siobhan Fox, Alison Cashell, W George Kernohan, Marie Lynch, Ciara McGlade, Tony O’Brien, Sean S O’Sullivan, Mary J Foley, Suzanne Timmons

Abstract

Palliative care is recommended for non-malignant illnesses, including Parkinson's disease. However, past research with healthcare workers highlights unmet palliative needs in this population and referral rates to Specialist Palliative Care are low. Some healthcare workers perceive a 'fear' in their patients about introducing palliative care. However, less is known about the views of people with Parkinson's disease and their carers about palliative care. (1) To explore the palliative care and related issues most affecting people with Parkinson's disease and their families and (2) to examine perceptions about/understanding of palliative care. This was a qualitative study; semi-structured interviews were conducted, transcribed and analysed using thematic analysis. A total of 31 people participated, both people with Parkinson's disease (n = 19) and carers (n = 12), across three Movement Disorder Clinics in the Republic of Ireland. People with Parkinson's disease and their carers were unfamiliar with the term palliative care. When informed of the role of palliative care, most felt that they would benefit from this input. People with Parkinson's disease and carers experienced a high illness burden and wanted extra support. Crises requiring Specialist Palliative Care involvement may occur at diagnosis and later, with advancing illness. Participants wanted more information about palliative care and especially further supports to address their psychosocial needs. A holistic palliative care approach could address the complex physical and psychosocial symptoms experienced by people with Parkinson's disease and their carers, and people with Parkinson's disease and their carers are open to palliative care. Further research needs to explore how palliative care can be introduced into the routine care for people with Parkinson's disease.

Twitter Demographics

The data shown below were collected from the profiles of 51 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 94 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 94 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 12 13%
Student > Ph. D. Student 11 12%
Researcher 11 12%
Student > Bachelor 10 11%
Student > Postgraduate 6 6%
Other 14 15%
Unknown 30 32%
Readers by discipline Count As %
Nursing and Health Professions 19 20%
Medicine and Dentistry 14 15%
Social Sciences 5 5%
Psychology 5 5%
Sports and Recreations 3 3%
Other 13 14%
Unknown 35 37%

Attention Score in Context

This research output has an Altmetric Attention Score of 35. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 10 April 2018.
All research outputs
#714,700
of 17,391,055 outputs
Outputs from Palliative Medicine
#286
of 1,715 outputs
Outputs of similar age
#17,942
of 276,906 outputs
Outputs of similar age from Palliative Medicine
#6
of 25 outputs
Altmetric has tracked 17,391,055 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 95th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,715 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 20.7. This one has done well, scoring higher than 83% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 276,906 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 93% of its contemporaries.
We're also able to compare this research output to 25 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 80% of its contemporaries.