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X Demographics
Mendeley readers
Attention Score in Context
| Title |
Palliative care for Parkinson’s disease: Patient and carer’s perspectives explored through qualitative interview
|
|---|---|
| Published in |
Palliative Medicine, September 2016
|
| DOI | 10.1177/0269216316669922 |
| Pubmed ID | |
| Authors |
Siobhan Fox, Alison Cashell, W George Kernohan, Marie Lynch, Ciara McGlade, Tony O’Brien, Sean S O’Sullivan, Mary J Foley, Suzanne Timmons |
| Abstract |
Palliative care is recommended for non-malignant illnesses, including Parkinson's disease. However, past research with healthcare workers highlights unmet palliative needs in this population and referral rates to Specialist Palliative Care are low. Some healthcare workers perceive a 'fear' in their patients about introducing palliative care. However, less is known about the views of people with Parkinson's disease and their carers about palliative care. (1) To explore the palliative care and related issues most affecting people with Parkinson's disease and their families and (2) to examine perceptions about/understanding of palliative care. This was a qualitative study; semi-structured interviews were conducted, transcribed and analysed using thematic analysis. A total of 31 people participated, both people with Parkinson's disease (n = 19) and carers (n = 12), across three Movement Disorder Clinics in the Republic of Ireland. People with Parkinson's disease and their carers were unfamiliar with the term palliative care. When informed of the role of palliative care, most felt that they would benefit from this input. People with Parkinson's disease and carers experienced a high illness burden and wanted extra support. Crises requiring Specialist Palliative Care involvement may occur at diagnosis and later, with advancing illness. Participants wanted more information about palliative care and especially further supports to address their psychosocial needs. A holistic palliative care approach could address the complex physical and psychosocial symptoms experienced by people with Parkinson's disease and their carers, and people with Parkinson's disease and their carers are open to palliative care. Further research needs to explore how palliative care can be introduced into the routine care for people with Parkinson's disease. |
X Demographics
The data shown below were collected from the profiles of 47 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 12 | 26% |
| Ireland | 6 | 13% |
| Australia | 4 | 9% |
| France | 3 | 6% |
| Netherlands | 2 | 4% |
| Venezuela, Bolivarian Republic of | 1 | 2% |
| United States | 1 | 2% |
| Kenya | 1 | 2% |
| Canada | 1 | 2% |
| Other | 2 | 4% |
| Unknown | 14 | 30% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 37 | 79% |
| Practitioners (doctors, other healthcare professionals) | 5 | 11% |
| Scientists | 4 | 9% |
| Science communicators (journalists, bloggers, editors) | 1 | 2% |
Mendeley readers
The data shown below were compiled from readership statistics for 125 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 125 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 15 | 12% |
| Researcher | 13 | 10% |
| Student > Ph. D. Student | 12 | 10% |
| Student > Bachelor | 12 | 10% |
| Student > Postgraduate | 6 | 5% |
| Other | 21 | 17% |
| Unknown | 46 | 37% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 24 | 19% |
| Medicine and Dentistry | 17 | 14% |
| Psychology | 7 | 6% |
| Social Sciences | 5 | 4% |
| Unspecified | 4 | 3% |
| Other | 18 | 14% |
| Unknown | 50 | 40% |
Attention Score in Context
This research output has an Altmetric Attention Score of 32. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 10 April 2018.
All research outputs
#1,204,095
of 24,988,588 outputs
Outputs from Palliative Medicine
#400
of 2,115 outputs
Outputs of similar age
#21,778
of 329,681 outputs
Outputs of similar age from Palliative Medicine
#14
of 39 outputs
Altmetric has tracked 24,988,588 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 95th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,115 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 20.7. This one has done well, scoring higher than 81% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 329,681 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 93% of its contemporaries.
We're also able to compare this research output to 39 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 66% of its contemporaries.