Real-World Data on Access to Standards of Care for People With Spinal Muscular Atrophy in the UK

RT @perry_fleur: Study on SMA Standards of Care shows a lack of access to cough assists. “However, limited access or no access to cough au…

What bothers me about this data is that part of the cohort is missing. Some of the people without access to a cough assist will not have been alive to fill in the survey, because they did not have access this life-extending equipment invented in the 60s.

Study on SMA Standards of Care shows a lack of access to cough assists. “However, limited access or no access to cough augmentation was reported by 15% of the non-sitters and sitters which raises the question of equitable access across the UK.” https://t

@MDUK_News Here is the related paper: https://t.co/EOAzF594oj @jwmdrc team