Insightful piece when thinking of those with rare diseases like aHUS. Discusses importance of early diagnosis, access to specialist nurses etc. Visit our website for information for patients & clinicians. Info on aHUS, specialist nurses within the ser
The European Conference on Rare Diseases recently published our abstract about cross border healthcare for those with #rarediseases in the Orphanet Journal of Rare Diseases. We're proud to support patients' access to therapy.: https://t.co/CXzTNuHMhn. http
RT @GeneticAll_UK: Psychotherapist-facilitated group support for rare condition ‘community leaders’ established during the Covid-19 pandemi…
RT @GeneticAll_UK: Delivering a good diagnosis: developing a rare conditions charter for #diagnosis An Abstract by the Genetic Alliance UK…