Title |
A pilot registry of unexplained fatiguing illnesses and chronic fatigue syndrome
|
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Published in |
BMC Research Notes, August 2013
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DOI | 10.1186/1756-0500-6-309 |
Pubmed ID | |
Authors |
Dana J Brimmer, Elizabeth Maloney, Rebecca Devlin, James F Jones, Roumiana Boneva, Caryn Nagler, Lisa LeRoy, Scott Royal, Hao Tian, Jin-Mann S Lin, Jennifer Kasten, Elizabeth R Unger |
Abstract |
Chronic fatigue syndrome (CFS) has no diagnostic clinical signs or biomarkers, so diagnosis requires ruling out conditions with similar signs and symptoms. We conducted a pilot registry of unexplained fatiguing illnesses and CFS to determine the feasibility of establishing and operating a registry and implementing an education outreach initiative. The pilot registry was conducted in Bibb County, Georgia. Patient referrals were obtained from healthcare providers who were identified by using various education outreach initiatives. These referrals were later supplemented with self-referrals by members of a local CFS support group. All patients meeting referral criteria were invited to participate in a screening interview to determine eligibility. If patients met registry criteria, they were invited to a one-day clinic for physical and laboratory evaluations. We classified patients based on the 1994 case definition. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 4 | 25% |
United States | 4 | 25% |
Canada | 1 | 6% |
Belgium | 1 | 6% |
Unknown | 6 | 38% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 14 | 88% |
Practitioners (doctors, other healthcare professionals) | 2 | 13% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 25 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 6 | 24% |
Student > Doctoral Student | 4 | 16% |
Student > Master | 3 | 12% |
Other | 2 | 8% |
Librarian | 2 | 8% |
Other | 5 | 20% |
Unknown | 3 | 12% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 9 | 36% |
Nursing and Health Professions | 8 | 32% |
Agricultural and Biological Sciences | 2 | 8% |
Social Sciences | 1 | 4% |
Arts and Humanities | 1 | 4% |
Other | 0 | 0% |
Unknown | 4 | 16% |