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Organizing national responses for rare blood disorders: the Italian experience with sickle cell disease in childhood

Overview of attention for article published in Orphanet Journal of Rare Diseases, October 2013
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  • Good Attention Score compared to outputs of the same age (66th percentile)
  • Average Attention Score compared to outputs of the same age and source

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4 X users
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1 Facebook page
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1 Google+ user

Citations

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28 Dimensions

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109 Mendeley
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Title
Organizing national responses for rare blood disorders: the Italian experience with sickle cell disease in childhood
Published in
Orphanet Journal of Rare Diseases, October 2013
DOI 10.1186/1750-1172-8-169
Pubmed ID
Authors

Raffaella Colombatti, Silverio Perrotta, Piera Samperi, Maddalena Casale, Nicoletta Masera, Giovanni Palazzi, Laura Sainati, Giovanna Russo, the Italian Association of Pediatric Hematology-Oncology (AIEOP) Sickle Cell Disease Working Group

Abstract

Sickle cell disease (SCD) is the most frequent hemoglobinopathy worldwide but remains a rare blood disorder in most western countries. Recommendations for standard of care have been produced in the United States, the United Kingdom and France, where this disease is relatively frequent because of earlier immigration from Africa. These recommendations have changed the clinical course of SCD but can be difficult to apply in other contexts. The Italian Association of Pediatric Hematology Oncology (AIEOP) decided to develop a common national response to the rising number of SCD patients in Italy with the following objectives: 1) to create a national working group focused on pediatric SCD, and 2) to develop tailored guidelines for the management of SCD that could be accessed and practiced by those involved in the care of children with SCD in Italy.

X Demographics

X Demographics

The data shown below were collected from the profiles of 4 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 109 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Belgium 1 <1%
Unknown 108 99%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 17 16%
Student > Master 17 16%
Student > Bachelor 11 10%
Researcher 9 8%
Student > Doctoral Student 8 7%
Other 21 19%
Unknown 26 24%
Readers by discipline Count As %
Medicine and Dentistry 38 35%
Nursing and Health Professions 9 8%
Social Sciences 7 6%
Psychology 5 5%
Biochemistry, Genetics and Molecular Biology 3 3%
Other 16 15%
Unknown 31 28%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 4. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 06 February 2014.
All research outputs
#8,262,445
of 25,374,917 outputs
Outputs from Orphanet Journal of Rare Diseases
#1,208
of 3,105 outputs
Outputs of similar age
#73,271
of 224,568 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#28
of 55 outputs
Altmetric has tracked 25,374,917 research outputs across all sources so far. This one has received more attention than most of these and is in the 66th percentile.
So far Altmetric has tracked 3,105 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has gotten more attention than average, scoring higher than 60% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 224,568 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 66% of its contemporaries.
We're also able to compare this research output to 55 others from the same source and published within six weeks on either side of this one. This one is in the 47th percentile – i.e., 47% of its contemporaries scored the same or lower than it.