Title |
Developing core outcomes sets: methods for identifying and including patient-reported outcomes (PROs)
|
---|---|
Published in |
Trials, February 2014
|
DOI | 10.1186/1745-6215-15-49 |
Pubmed ID | |
Authors |
Rhiannon C Macefield, Marc Jacobs, Ida J Korfage, Joanna Nicklin, Robert N Whistance, Sara T Brookes, Mirjam AG Sprangers, Jane M Blazeby |
Abstract |
Synthesis of patient-reported outcome (PRO) data is hindered by the range of available PRO measures (PROMs) composed of multiple scales and single items with differing terminology and content. The use of core outcome sets, an agreed minimum set of outcomes to be measured and reported in all trials of a specific condition, may improve this issue but methods to select core PRO domains from the many available PROMs are lacking. This study examines existing PROMs and describes methods to identify health domains to inform the development of a core outcome set, illustrated with an example. |
X Demographics
Geographical breakdown
Country | Count | As % |
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United Kingdom | 17 | 68% |
Canada | 1 | 4% |
Unknown | 7 | 28% |
Demographic breakdown
Type | Count | As % |
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Members of the public | 13 | 52% |
Scientists | 9 | 36% |
Practitioners (doctors, other healthcare professionals) | 3 | 12% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
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Germany | 1 | <1% |
Italy | 1 | <1% |
Australia | 1 | <1% |
United Kingdom | 1 | <1% |
Japan | 1 | <1% |
Unknown | 159 | 97% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Ph. D. Student | 30 | 18% |
Researcher | 29 | 18% |
Student > Master | 17 | 10% |
Student > Bachelor | 16 | 10% |
Student > Doctoral Student | 7 | 4% |
Other | 30 | 18% |
Unknown | 35 | 21% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 64 | 39% |
Nursing and Health Professions | 20 | 12% |
Psychology | 14 | 9% |
Social Sciences | 4 | 2% |
Agricultural and Biological Sciences | 4 | 2% |
Other | 9 | 5% |
Unknown | 49 | 30% |