Title |
How Should Clinicians Counsel a Woman with a Strong Family History of Early-Onset Alzheimer’s Disease about Her Pregnancy?
|
---|---|
Published in |
The AMA Journal of Ethic, July 2017
|
DOI | 10.1001/journalofethics.2017.19.7.ecas4-1707 |
Pubmed ID | |
Authors |
Marianna V Mapes, Barbara M O'Brien, Louise P King |
Abstract |
Counseling patients regarding the benefits, harms, and dilemmas of genetic testing is one of the greatest ethical challenges facing reproductive medicine today. With or without test results, clinicians grapple with how to communicate potential genetic risks as patients weigh their reproductive options. Here, we consider a case of a woman with a strong family history of early-onset Alzheimer's disease (EOAD). She is early in her pregnancy and unsure about learning her own genetic status. We address the ethical ramifications of each of her options, which include genetic testing, genetic counseling, and termination versus continuation of the pregnancy. Our analysis foregrounds clinicians' role in helping to ensure autonomous decision making as the patient reflects on these clinical options in light of her goals and values. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 5 | 31% |
Canada | 1 | 6% |
Switzerland | 1 | 6% |
Kenya | 1 | 6% |
Argentina | 1 | 6% |
Mexico | 1 | 6% |
Unknown | 6 | 38% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 11 | 69% |
Science communicators (journalists, bloggers, editors) | 2 | 13% |
Scientists | 2 | 13% |
Practitioners (doctors, other healthcare professionals) | 1 | 6% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 24 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Bachelor | 6 | 25% |
Student > Master | 5 | 21% |
Researcher | 3 | 13% |
Student > Ph. D. Student | 1 | 4% |
Other | 1 | 4% |
Other | 0 | 0% |
Unknown | 8 | 33% |
Readers by discipline | Count | As % |
---|---|---|
Nursing and Health Professions | 4 | 17% |
Medicine and Dentistry | 4 | 17% |
Agricultural and Biological Sciences | 2 | 8% |
Social Sciences | 2 | 8% |
Psychology | 1 | 4% |
Other | 3 | 13% |
Unknown | 8 | 33% |