Title |
Human genetic research, race, ethnicity and the labeling of populations: recommendations based on an interdisciplinary workshop in Japan
|
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Published in |
BMC Medical Ethics, April 2014
|
DOI | 10.1186/1472-6939-15-33 |
Pubmed ID | |
Authors |
Yasuko Takezawa, Kazuto Kato, Hiroki Oota, Timothy Caulfield, Akihiro Fujimoto, Shunwa Honda, Naoyuki Kamatani, Shoji Kawamura, Kohei Kawashima, Ryosuke Kimura, Hiromi Matsumae, Ayako Saito, Patrick E Savage, Noriko Seguchi, Keiko Shimizu, Satoshi Terao, Yumi Yamaguchi-Kabata, Akira Yasukouchi, Minoru Yoneda, Katsushi Tokunaga |
Abstract |
A challenge in human genome research is how to describe the populations being studied. The use of improper and/or imprecise terms has the potential to both generate and reinforce prejudices and to diminish the clinical value of the research. The issue of population descriptors has not attracted enough academic attention outside North America and Europe. In January 2012, we held a two-day workshop, the first of its kind in Japan, to engage in interdisciplinary dialogue between scholars in the humanities, social sciences, medical sciences, and genetics to begin an ongoing discussion of the social and ethical issues associated with population descriptors. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Japan | 13 | 19% |
Canada | 9 | 13% |
United States | 3 | 4% |
United Kingdom | 2 | 3% |
Mexico | 1 | 1% |
Thailand | 1 | 1% |
Denmark | 1 | 1% |
New Zealand | 1 | 1% |
Unknown | 36 | 54% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 57 | 85% |
Scientists | 9 | 13% |
Practitioners (doctors, other healthcare professionals) | 1 | 1% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Japan | 2 | 4% |
Turkey | 1 | 2% |
Luxembourg | 1 | 2% |
Unknown | 50 | 93% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 10 | 19% |
Student > Master | 8 | 15% |
Student > Bachelor | 5 | 9% |
Professor > Associate Professor | 4 | 7% |
Student > Ph. D. Student | 4 | 7% |
Other | 11 | 20% |
Unknown | 12 | 22% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 11 | 20% |
Social Sciences | 9 | 17% |
Biochemistry, Genetics and Molecular Biology | 5 | 9% |
Psychology | 5 | 9% |
Agricultural and Biological Sciences | 5 | 9% |
Other | 7 | 13% |
Unknown | 12 | 22% |