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Shining a light in the black box of orphan drug pricing

Overview of attention for article published in Orphanet Journal of Rare Diseases, April 2014
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (87th percentile)
  • High Attention Score compared to outputs of the same age and source (86th percentile)

Mentioned by

policy
1 policy source
twitter
13 X users

Citations

dimensions_citation
45 Dimensions

Readers on

mendeley
129 Mendeley
citeulike
1 CiteULike
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Title
Shining a light in the black box of orphan drug pricing
Published in
Orphanet Journal of Rare Diseases, April 2014
DOI 10.1186/1750-1172-9-62
Pubmed ID
Authors

Eline Picavet, Thomas Morel, David Cassiman, Steven Simoens

Abstract

The pricing mechanism of orphan drugs appears arbitrary and has been referred to as a "black box". Therefore, the aim of this study is to investigate how drug- and disease-specific variables relate to orphan drug prices. Additionally, we aim to explore if certain country-specific pricing and reimbursement policies affect the price level of orphan drugs.

X Demographics

X Demographics

The data shown below were collected from the profiles of 13 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 129 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Nepal 1 <1%
United States 1 <1%
Ireland 1 <1%
Brazil 1 <1%
Unknown 125 97%

Demographic breakdown

Readers by professional status Count As %
Student > Master 22 17%
Researcher 21 16%
Other 15 12%
Student > Bachelor 11 9%
Student > Ph. D. Student 11 9%
Other 27 21%
Unknown 22 17%
Readers by discipline Count As %
Medicine and Dentistry 35 27%
Pharmacology, Toxicology and Pharmaceutical Science 18 14%
Economics, Econometrics and Finance 10 8%
Social Sciences 9 7%
Agricultural and Biological Sciences 7 5%
Other 23 18%
Unknown 27 21%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 11. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 03 October 2015.
All research outputs
#3,188,557
of 25,374,647 outputs
Outputs from Orphanet Journal of Rare Diseases
#440
of 3,105 outputs
Outputs of similar age
#30,819
of 241,070 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#6
of 45 outputs
Altmetric has tracked 25,374,647 research outputs across all sources so far. Compared to these this one has done well and is in the 87th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,105 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has done well, scoring higher than 85% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 241,070 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 87% of its contemporaries.
We're also able to compare this research output to 45 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 86% of its contemporaries.