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Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation

Overview of attention for article published in Revista da Associação Médica Brasileira, April 2017
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Title
Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation
Published in
Revista da Associação Médica Brasileira, April 2017
DOI 10.1590/1806-9282.63.04.311
Pubmed ID
Authors

Ivy Jungerman, Julia Toyota, Neyller Patriota Montoni, Elma Heitmann Mares Azevedo, Renata Ligia Vieira Guedes, Aline Damascena, Derek Lowe, José Guilherme Vartanian, Simon N. Rogers, Luiz Paulo Kowalski

Abstract

The purpose of this study was to translate, culturally validate and evaluate the Patients Concerns Inventory - Head and Neck (PCI-H&N) in a consecutive series of Brazilian patients. This study included adult patients treated for upper aerodigestive tract (UADT) cancer. The translation and cultural adaptation of the PCI-H&N followed internationally accepted guidelines and included a pretest sample of patients that completed the first Brazilian Portuguese version of the PCI. Use, feasibility and acceptability of the PCI were tested subsequently in a consecutive series of UADT cancer patients that completed the final Brazilian Portuguese version of the PCI and a Brazilian Portuguese version of the University of Washington Quality of Life Questionnaire (UW-QOL). Associations between physical and socio-emotional composite scores from the UW-QOL and the PCI were analyzed. Twenty (20) patients participated in the pretest survey (translation and cultural adaptation process), and 84 patients were analyzed in the cultural validation study. Issues most selected were: fear of cancer returning, dry mouth, chewing/eating, speech/voice/being understood, swallowing, dental health/teeth, anxiety, fatigue/tiredness, taste, and fear of adverse events. The three specialists most selected by the patients for further consultation were speech therapist, dentist and psychologist. Statistically significant relationships between PCI and UW-QOL were found. The translation and cultural adaptation of the PCI into Brazilian Portuguese language was successful, and the results demonstrate its feasibility and usefulness, making this a valuable tool for use among the Brazilian head and neck cancer population.

Mendeley readers

The data shown below were compiled from readership statistics for 60 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 60 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 11 18%
Student > Master 9 15%
Student > Ph. D. Student 5 8%
Researcher 4 7%
Other 4 7%
Other 11 18%
Unknown 16 27%
Readers by discipline Count As %
Medicine and Dentistry 21 35%
Nursing and Health Professions 6 10%
Agricultural and Biological Sciences 4 7%
Social Sciences 2 3%
Immunology and Microbiology 1 2%
Other 6 10%
Unknown 20 33%