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“Teach-to-Goal” to Better Assess Informed Consent Comprehension among Incarcerated Clinical Research Participants

Overview of attention for article published in The AMA Journal of Ethic, September 2017
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Title
“Teach-to-Goal” to Better Assess Informed Consent Comprehension among Incarcerated Clinical Research Participants
Published in
The AMA Journal of Ethic, September 2017
DOI 10.1001/journalofethics.2017.19.9.peer3-1709
Pubmed ID
Authors

Cyrus Ahalt, Rebecca Sudore, Marielle Bolano, Lia Metzger, Anna M Darby, Brie Williams

Abstract

Correctional health research requires important safeguards to ensure that research participation is ethically conducted. In addition to having disproportionately low educational attainment and low literacy, incarcerated people suffer from health-related conditions that can affect cognition (e.g., traumatic brain injury, substance use disorders, mental illness). Yet modified informed consent processes that assess participants' comprehension of the risks and benefits of participation are not required by relevant federal guidelines. A push to assess comprehension of informed consent documents is particularly timely given an increase in demand for correctional health research in the context of criminal justice reform. We argue that comprehension assessments can identify persons who should be excluded from research and help those who will ultimately participate in studies better understand the risks and benefits of their participation.

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Mendeley readers

The data shown below were compiled from readership statistics for 40 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 40 100%

Demographic breakdown

Readers by professional status Count As %
Researcher 7 18%
Student > Bachelor 5 13%
Student > Doctoral Student 4 10%
Student > Master 4 10%
Student > Ph. D. Student 3 8%
Other 6 15%
Unknown 11 28%
Readers by discipline Count As %
Psychology 5 13%
Social Sciences 5 13%
Medicine and Dentistry 5 13%
Nursing and Health Professions 2 5%
Unspecified 1 3%
Other 7 18%
Unknown 15 38%