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Self-management support and eHealth for patients and informal caregivers confronted with advanced cancer: an online focus group study among nurses

Overview of attention for article published in BMC Palliative Care, November 2017
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  • Above-average Attention Score compared to outputs of the same age (54th percentile)
  • Average Attention Score compared to outputs of the same age and source

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Title
Self-management support and eHealth for patients and informal caregivers confronted with advanced cancer: an online focus group study among nurses
Published in
BMC Palliative Care, November 2017
DOI 10.1186/s12904-017-0238-4
Pubmed ID
Authors

Vina N. Slev, H. Roeline W. Pasman, Corien M. Eeltink, Cornelia F. van Uden-Kraan, Irma M. Verdonck-de Leeuw, Anneke L. Francke

Abstract

Self-management by patients and informal caregivers confronted with advanced cancer is not self-evident. Therefore they might need self-management support from nurses. This article reports on nurses' perspectives on self-management support for people confronted with advanced cancer, and nurses' experiences with eHealth in this context. Six online focus groups were organized, with a total of 45 Dutch nurses with different educational levels and working in different care settings. Nurses were asked how they support patients and informal caregivers facing advanced cancer in managing physical and psychosocial problems in their daily life. Questions were also asked regarding the nurses' experiences with eHealth. Transcripts of the online focus group discussions were analyzed qualitatively following the principles of thematic analysis. The main themes derived from the analyses were ordered according to the elements in the 5 A's Behavior Change Model. Within the scope of self-management support, nurses reported that they discuss the background, personal situation, wishes, and needs of advanced cancer patients ('Assess' in the 5 A's model), and they provide information about cancer and specifically the advanced type ('Advise'). However, nurses hardly give any advice on how patients can manage physical and psychological problems themselves and/or pay any attention to collaborative goal-setting ('Agree'). Neither do they explain how follow-up can be arranged ('Arrange'). In addition, they do not appear to pay much attention to self-management support for informal caregivers. Nurses' attitudes towards eHealth within the scope of self-management support are positive. They see many advantages, such as allowing advanced cancer patients to stay in charge of their own care and lives. However, nurses also explicitly stressed that eHealth can never be a substitute for personal contact between nurses and patients. Nurses value self-management support and eHealth for advanced cancer patients and their informal caregivers. However, they seem to disregard important elements in the support of self-management, such as providing practical advice, collaborative goal-setting, and arrangement of follow-up. We recommend further promoting and clarifying the essence and importance of self-management support, including self-management support for informal caregivers.

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The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 161 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 161 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 26 16%
Student > Bachelor 19 12%
Student > Ph. D. Student 14 9%
Student > Doctoral Student 14 9%
Researcher 11 7%
Other 35 22%
Unknown 42 26%
Readers by discipline Count As %
Nursing and Health Professions 41 25%
Medicine and Dentistry 24 15%
Psychology 11 7%
Social Sciences 9 6%
Computer Science 6 4%
Other 19 12%
Unknown 51 32%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 23 November 2017.
All research outputs
#13,123,763
of 23,642,687 outputs
Outputs from BMC Palliative Care
#862
of 1,300 outputs
Outputs of similar age
#198,863
of 440,697 outputs
Outputs of similar age from BMC Palliative Care
#22
of 32 outputs
Altmetric has tracked 23,642,687 research outputs across all sources so far. This one is in the 44th percentile – i.e., 44% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,300 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 9.5. This one is in the 32nd percentile – i.e., 32% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 440,697 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 54% of its contemporaries.
We're also able to compare this research output to 32 others from the same source and published within six weeks on either side of this one. This one is in the 31st percentile – i.e., 31% of its contemporaries scored the same or lower than it.