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Ethics, Law and Governance of Biobanking

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Cover of 'Ethics, Law and Governance of Biobanking'

Table of Contents

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    Book Overview
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    Chapter 1 Ethics Law and Governance of Biobanking: A Very Complex Normative Puzzle
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    Chapter 2 Biobanks: A Definition
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    Chapter 3 A Participatory Space Beyond the “Autonomy Versus Property” Dichotomy
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    Chapter 4 Intellectual Property and Biobanks
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    Chapter 5 Consent, Privacy and Property in the Italian Biobanks Regulation: A Hybrid Model Within EU?
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    Chapter 6 Data Protection Principles and Research in the Biobanks Age
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    Chapter 7 The New General Data Protection Regulation—Where Are We Are and Where Might We Be Heading?
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    Chapter 8 The Tension Between Data Sharing and the Protection of Privacy in Genomics Research
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    Chapter 9 Incidental Findings: The Time Is not yet Ripe for a Policy for Biobanks
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    Chapter 10 Biobanking Across Borders: The Challenges of Harmonisation
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    Chapter 11 Governing Biobanks Through a European Infrastructure
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    Chapter 12 EU Governance for Research and Ethics in Biobanks
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    Chapter 13 A Bold Experiment: Iceland’s Genomic Venture
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    Chapter 14 The Estonian Genome Center, University of Tartu
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    Chapter 15 Management of the Ethical Aspects of a Local Mental Diseases Biobank for Research Purposes: The Italian Experience
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    Chapter 16 Biobank Governance in Spain: From the Autonomy of Research Ethics Committees to the Autonomy of Lay People
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    Chapter 17 Public Deliberation and the Role of Stakeholders as a New Frontier in the Governance of Science: The British Columbia Biobank Deliberation and the DePGx Project
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    Chapter 18 Making Researchers Moral
Attention for Chapter 2: Biobanks: A Definition
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19 Mendeley
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Chapter title
Biobanks: A Definition
Chapter number 2
Book title
Ethics, Law and Governance of Biobanking
Published by
Springer, Dordrecht, January 2015
DOI 10.1007/978-94-017-9573-9_2
Book ISBNs
978-9-40-179572-2, 978-9-40-179573-9

Barbara Parodi

Mendeley readers

The data shown below were compiled from readership statistics for 19 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 19 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 5 26%
Researcher 4 21%
Other 2 11%
Student > Bachelor 2 11%
Student > Ph. D. Student 1 5%
Other 0 0%
Unknown 5 26%
Readers by discipline Count As %
Medicine and Dentistry 5 26%
Agricultural and Biological Sciences 3 16%
Immunology and Microbiology 1 5%
Nursing and Health Professions 1 5%
Psychology 1 5%
Other 3 16%
Unknown 5 26%