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Ethics, Law and Governance of Biobanking

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Cover of 'Ethics, Law and Governance of Biobanking'

Table of Contents

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    Book Overview
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    Chapter 1 Ethics Law and Governance of Biobanking: A Very Complex Normative Puzzle
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    Chapter 2 Biobanks: A Definition
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    Chapter 3 A Participatory Space Beyond the “Autonomy Versus Property” Dichotomy
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    Chapter 4 Intellectual Property and Biobanks
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    Chapter 5 Consent, Privacy and Property in the Italian Biobanks Regulation: A Hybrid Model Within EU?
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    Chapter 6 Data Protection Principles and Research in the Biobanks Age
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    Chapter 7 The New General Data Protection Regulation—Where Are We Are and Where Might We Be Heading?
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    Chapter 8 The Tension Between Data Sharing and the Protection of Privacy in Genomics Research
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    Chapter 9 Incidental Findings: The Time Is not yet Ripe for a Policy for Biobanks
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    Chapter 10 Biobanking Across Borders: The Challenges of Harmonisation
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    Chapter 11 Governing Biobanks Through a European Infrastructure
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    Chapter 12 EU Governance for Research and Ethics in Biobanks
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    Chapter 13 A Bold Experiment: Iceland’s Genomic Venture
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    Chapter 14 The Estonian Genome Center, University of Tartu
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    Chapter 15 Management of the Ethical Aspects of a Local Mental Diseases Biobank for Research Purposes: The Italian Experience
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    Chapter 16 Biobank Governance in Spain: From the Autonomy of Research Ethics Committees to the Autonomy of Lay People
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    Chapter 17 Public Deliberation and the Role of Stakeholders as a New Frontier in the Governance of Science: The British Columbia Biobank Deliberation and the DePGx Project
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    Chapter 18 Making Researchers Moral
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