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Comparative Issues in the Governance of Research Biobanks

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Cover of 'Comparative Issues in the Governance of Research Biobanks'

Table of Contents

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    Book Overview
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    Chapter 1 Introduction: A Law and Technology Approach to the Law of Biobanking
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    Chapter 2 Research Biobanks Meet Synthetic Biology: Autonomy and Ownership
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    Chapter 3 Regulating Biobanks: Another Triple Bottom Line
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    Chapter 4 Health Insurance, Employment, and the Human Genome: Genetic Discrimination and Biobanks in the United States
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    Chapter 5 Ownership of Biomedical Information in Biobanks
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    Chapter 6 Human Tissues in the “Public Space”: Beyond the Property/Privacy Dichotomy
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    Chapter 7 Should Privacy Be Abolished in Genetics and Biobanking?
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    Chapter 8 Biobanks and Electronic Health Records: Open Issues
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    Chapter 9 Informed Consent and Research Biobanks: A Challenge in Three Dimensions
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    Chapter 10 The Challenges of Achieving Open Source Sharing of Biobank Data
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    Chapter 11 Beyond Open Source: Patents, Biobanks and Sharing
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    Chapter 12 Opening Research Biobanks: An Overview
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    Chapter 13 The Roles of Material Transfer Agreements in Genetics Databases and Bio-Banks
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    Chapter 14 Quasi-Patents and Semi-Patents in Biobanking
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    Chapter 15 Accessing Accessions: Biobanks and Benefit-Sharing
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    Chapter 16 Conveying Information, Generating Trust: The Role of Certifications in Biobanking
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    Chapter 17 Scientific and Managerial Premises and Unresolved Issues in Tumour Biobanking Activities
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    Chapter 18 The Italian Prototype Networks of Research Biobanks
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    Chapter 19 Governance of Biobanks for Cancer Research: Proposal for a Material Transfer Agreement
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3 tweeters

Citations

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Title
Comparative Issues in the Governance of Research Biobanks
Published by
Springer Berlin Heidelberg, January 2013
DOI 10.1007/978-3-642-33116-9
ISBNs
978-3-64-233115-2, 978-3-64-233116-9
Editors

Pascuzzi, Giovanni, Izzo, Umberto, Macilotti, Matteo

Twitter Demographics

The data shown below were collected from the profiles of 3 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 15 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 15 100%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 5 33%
Student > Master 4 27%
Student > Bachelor 2 13%
Professor 1 7%
Other 1 7%
Other 0 0%
Unknown 2 13%
Readers by discipline Count As %
Social Sciences 6 40%
Agricultural and Biological Sciences 1 7%
Nursing and Health Professions 1 7%
Computer Science 1 7%
Arts and Humanities 1 7%
Other 1 7%
Unknown 4 27%