Pediatric and Congenital Cardiac Care

Chapter 1 Introduction

Chapter 2 Introduction: The History of Statistics in Medicine and Surgery

Chapter 3 Introduction: Using Data to Drive Change and Improvement: The Legacy of Florence Nightingale

Chapter 4 Introduction: Quality Improvement and Databases in the Context of Professionalism

Chapter 5 Nomenclature for Congenital and Pediatric Cardiac Disease: Historical Perspectives and the International Pediatric and Congenital Cardiac Code

Chapter 6 Defining Terms in Lists of Nomenclature

Chapter 7 Illustrating Terms in Lists of Nomenclature

Chapter 8 Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Cardiac Surgery

Chapter 9 Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Cardiology

Chapter 10 Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Anesthesia

Chapter 11 Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Critical Care

Chapter 12 Early Database Initiatives: The Fyler Codes

Chapter 13 The Academic Database: Lessons Learned from the Congenital Heart Surgeons’ Society Data Center

Chapter 14 Clinical Versus Administrative Data

Chapter 15 Databases for Pediatric Cardiac Transplantation: The United Network for Organ Sharing/Scientific Registry of Transplant Recipients (UNOS/SRTR) and the Pediatric Heart Transplant Study (PHTS)

Chapter 16 Databases for Extracorporeal Membrane Oxygenation and Ventricular Assist Devices

Chapter 17 The United Kingdom National Congenital Heart Disease Audit

Chapter 18 The Pediatric Cardiac Care Consortium: The End of an Era and Beginning of a New Mission

Chapter 19 Pediatric Cardiac Catheterization Databases

Chapter 20 Pediatric Electrophysiology Databases

Chapter 21 Using Data to Drive Improvement and Build the Science of Nursing

Chapter 22 Data Standards of the American College of Cardiology Foundation (ACCF) and the American Heart Association (AHA) and the Universal Pediatric Cardiac Dataset

Chapter 23 Ethical Issues Confronting Outcomes Analysis and Quality Assurance

Chapter 24 Statistical Issues in the Analysis and Interpretation of Outcomes for Congenital Cardiac Surgery

Chapter 25 Real Time Monitoring of Risk-Adjusted Surgical Outcomes for Congenital Heart Disease

Chapter 26 Risk Adjustment for Congenital Heart Surgery -1 (RACHS-1) for Evaluation of Mortality in Children Undergoing Cardiac Surgery

Chapter 27 The Aristotle Complexity Score: A Tool to Evaluate Performance in Congenital Heart Surgery

Chapter 28 Empirically Based Tools for Analyzing Mortality and Morbidity Associated with Congenital Heart Surgery

Chapter 29 Verification of Data Completeness and Accuracy

Chapter 30 Linking Databases

Chapter 31 Use of National Death Registries to Empower Databases in Reporting Longitudinal Follow-Up

Chapter 33 Longitudinal Follow-Up Studies in the Pediatric Heart Network

Chapter 34 The Value of National Institutes of Health (NIH) Registry-Based Research in Identifying Childhood Cardiac Disease Outcomes: The Pediatric Cardiomyopathy Registry Experience

Chapter 35 Public Reporting of Cardiac Data: Pros, Cons, and Lessons for the Future

Chapter 36 Public Reporting of Pediatric Cardiac Data

Chapter 37 Communication Chaos: How Incomplete and Conflicting Information Prevents Improved Outcomes for Patients with Pediatric and Congenital Cardiac Disease (and What We Can Do About It)