Title |
A biobank management model applicable to biomedical research
|
---|---|
Published in |
BMC Medical Ethics, April 2006
|
DOI | 10.1186/1472-6939-7-4 |
Pubmed ID | |
Authors |
Christiane Auray-Blais, Johane Patenaude |
Abstract |
The work of Research Ethics Boards (REBs), especially when involving genetics research and biobanks, has become more challenging with the growth of biotechnology and biomedical research. Some REBs have even rejected research projects where the use of a biobank with coded samples was an integral part of the study, the greatest fear being the lack of participant protection and uncontrolled use of biological samples or related genetic data. The risks of discrimination and stigmatization are a recurrent issue. In light of the increasing interest in biomedical research and the resulting benefits to the health of participants, it is imperative that practical solutions be found to the problems associated with the management of biobanks: namely, protecting the integrity of the research participants, as well as guaranteeing the security and confidentiality of the participant's information. |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Brazil | 2 | 2% |
India | 1 | <1% |
United Kingdom | 1 | <1% |
Canada | 1 | <1% |
Argentina | 1 | <1% |
Belgium | 1 | <1% |
United States | 1 | <1% |
Unknown | 113 | 93% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 29 | 24% |
Student > Master | 14 | 12% |
Student > Ph. D. Student | 13 | 11% |
Student > Bachelor | 8 | 7% |
Professor > Associate Professor | 8 | 7% |
Other | 29 | 24% |
Unknown | 20 | 17% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 30 | 25% |
Social Sciences | 18 | 15% |
Agricultural and Biological Sciences | 15 | 12% |
Biochemistry, Genetics and Molecular Biology | 7 | 6% |
Nursing and Health Professions | 5 | 4% |
Other | 21 | 17% |
Unknown | 25 | 21% |