Title |
Bridging consent: from toll bridges to lift bridges?
|
---|---|
Published in |
BMC Medical Genomics, October 2011
|
DOI | 10.1186/1755-8794-4-69 |
Pubmed ID | |
Authors |
Isabelle Budin-Ljøsne, Anne Marie Tassé, Bartha Maria Knoppers, Jennifer R Harris |
Abstract |
The ability to share human biological samples, associated data and results across disease-specific and population-based human research biobanks is becoming increasingly important for research into disease development and translation. Although informed consent often does not anticipate such cross-domain sharing, it is important to examine its plausibility. The purpose of this study was to explore the feasibility of bridging consent between disease-specific and population-based research. Comparative analyses of 1) current ethical and legal frameworks governing consent and 2) informed consent models found in disease-specific and population-based research were conducted. |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Belgium | 1 | 4% |
Switzerland | 1 | 4% |
Unknown | 21 | 91% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 7 | 30% |
Student > Master | 3 | 13% |
Unspecified | 2 | 9% |
Student > Ph. D. Student | 2 | 9% |
Student > Bachelor | 1 | 4% |
Other | 5 | 22% |
Unknown | 3 | 13% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 6 | 26% |
Social Sciences | 5 | 22% |
Agricultural and Biological Sciences | 4 | 17% |
Business, Management and Accounting | 2 | 9% |
Unspecified | 2 | 9% |
Other | 1 | 4% |
Unknown | 3 | 13% |