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X Demographics
Mendeley readers
| Title |
Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations
|
|---|---|
| Published in |
The Journal of Law, Medicine & Ethics, January 2021
|
| DOI | 10.1111/jlme.12288 |
| Pubmed ID | |
| Authors |
Susan M Wolf, Rebecca Branum, Barbara A Koenig, Gloria M Petersen, Susan A Berry, Laura M Beskow, Mary B Daly, Conrad V Fernandez, Robert C Green, Bonnie S LeRoy, Noralane M Lindor, P Pearl O'Rourke, Carmen Radecki Breitkopf, Mark A Rothstein, Brian Van Ness, Benjamin S Wilfond |
| Abstract |
Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but also to the participant's family. Yet investigators lack guidance on return of results to relatives, including after the participant's death. In this paper, a national working group offers consensus analysis and recommendations, including an ethical framework to guide investigators in managing this challenging issue, before and after the participant's death. |
X Demographics
The data shown below were collected from the profiles of 18 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United States | 5 | 28% |
| Japan | 1 | 6% |
| Canada | 1 | 6% |
| Unknown | 11 | 61% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 10 | 56% |
| Scientists | 5 | 28% |
| Practitioners (doctors, other healthcare professionals) | 2 | 11% |
| Science communicators (journalists, bloggers, editors) | 1 | 6% |
Mendeley readers
The data shown below were compiled from readership statistics for 120 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United States | 2 | 2% |
| United Kingdom | 1 | <1% |
| Korea, Republic of | 1 | <1% |
| Netherlands | 1 | <1% |
| Unknown | 115 | 96% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 20 | 17% |
| Researcher | 19 | 16% |
| Student > Bachelor | 18 | 15% |
| Student > Ph. D. Student | 11 | 9% |
| Professor | 10 | 8% |
| Other | 22 | 18% |
| Unknown | 20 | 17% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 28 | 23% |
| Social Sciences | 14 | 12% |
| Biochemistry, Genetics and Molecular Biology | 13 | 11% |
| Nursing and Health Professions | 13 | 11% |
| Agricultural and Biological Sciences | 11 | 9% |
| Other | 18 | 15% |
| Unknown | 23 | 19% |