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Postal recruitment and consent obtainment from index cases of narcolepsy

Overview of attention for article published in BMC Medical Ethics, January 2016
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Title
Postal recruitment and consent obtainment from index cases of narcolepsy
Published in
BMC Medical Ethics, January 2016
DOI 10.1186/s12910-016-0089-1
Pubmed ID
Authors

Gambo Aliyu, Salah M. Mahmud

Abstract

Access to research volunteers may be hampered by low numbers of cases and few eligible participants for rare diseases in clinical settings. We recruited volunteers and obtained informed consent by mail from narcolepsy cases in a case-control study, and here in we report feasibility, response rate, timeliness and cost. We invited index cases into the study by mail through their care-giving physicians then mailed study information and consent forms to cases that indicated interest in the study. Of the 33 index cases invited, 15 (45.0 %) expressed interest in the study, and of those, 14 (93.3 %) returned their signed informed consents by mail. The median number of days from invitation to consent return was 39, interquartile range = 45, and the cost per consent obtained from the recruited subjects was $ 23.61. In this setting, postal recruitment for biomedical research on rare conditions is feasible and time and cost effective.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 17 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 17 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 3 18%
Researcher 2 12%
Student > Postgraduate 2 12%
Student > Bachelor 1 6%
Professor 1 6%
Other 4 24%
Unknown 4 24%
Readers by discipline Count As %
Medicine and Dentistry 4 24%
Nursing and Health Professions 2 12%
Social Sciences 2 12%
Business, Management and Accounting 1 6%
Sports and Recreations 1 6%
Other 0 0%
Unknown 7 41%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 17 January 2016.
All research outputs
#18,436,183
of 22,840,638 outputs
Outputs from BMC Medical Ethics
#896
of 993 outputs
Outputs of similar age
#283,813
of 392,526 outputs
Outputs of similar age from BMC Medical Ethics
#19
of 20 outputs
Altmetric has tracked 22,840,638 research outputs across all sources so far. This one is in the 11th percentile – i.e., 11% of other outputs scored the same or lower than it.
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