Open-source, Rapid Reporting of Dementia Evaluations.
Journal of registry management, January 2015
Graves, Rasinio S, Mahnken, Jonathan D, Swerdlow, Russell H, Burns, Jeffrey M, Price, Cathy, Amstein, Brad, Hunt, Suzanne L, Brown, Lexi, Adagarla, Bhargav, Vidoni, Eric D
The National Institutes of Health Alzheimer's Disease Center consortium requires member institutions to build and maintain a longitudinally characterized cohort with a uniform standard data set. Increasingly, centers are employing electronic data capture to acquire data at annual evaluations. In this paper, the University of Kansas Alzheimer's Disease Center reports on an open-source system of electronic data collection and reporting to improve efficiency. This Center capitalizes on the speed, flexibility and accessibility of the system to enhance the evaluation process while rapidly transferring data to the National Alzheimer's Coordinating Center. This framework holds promise for other consortia that regularly use and manage large, standardized datasets.
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