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Exploring the usability of EUCERD core indicators for rare diseases.

Overview of attention for article published in Annali dell'Istituto Superiore di Sanità, January 2015
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Title
Exploring the usability of EUCERD core indicators for rare diseases.
Published in
Annali dell'Istituto Superiore di Sanità, January 2015
DOI 10.4415/ann_15_04_15
Pubmed ID
Authors

Rita Maria Ferrelli, Marta De Santis, Amalia Egle Gentile, Domenica Taruscio

Abstract

In the context of the Community Programme in the field of Health, the European Commission financed a series of initiatives to support the development and use of indicators for planning health services for Rare Diseases (RDs). The European Project for Rare Disease National Plans Development (EUROPLAN) elaborated a set of 59 process and outcome indicators, for monitoring the implementation and for evaluating the impact of the National Plans on RDs. Due to the high number and difficulty in handling the indicators, the subsequent Joint Action "Working for RDs" planned to derive a selection of 21 core indicators that were adopted by the European Union Committee of Experts on RDs in June 2013. The descriptive study carried out in the framework of the Joint Action to select the key indicators to orient policies for RDs shows that core indicators represent an excellent opportunity to share knowledge and comparability among Member States.

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The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 8 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 8 100%

Demographic breakdown

Readers by professional status Count As %
Student > Doctoral Student 2 25%
Student > Master 2 25%
Professor > Associate Professor 2 25%
Researcher 2 25%
Student > Ph. D. Student 2 25%
Other 3 38%
Readers by discipline Count As %
Nursing and Health Professions 3 38%
Medicine and Dentistry 3 38%
Psychology 2 25%
Business, Management and Accounting 1 13%
Economics, Econometrics and Finance 1 13%
Other 3 38%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 28 January 2016.
All research outputs
#17,289,387
of 25,382,440 outputs
Outputs from Annali dell'Istituto Superiore di Sanità
#141
of 279 outputs
Outputs of similar age
#220,199
of 359,549 outputs
Outputs of similar age from Annali dell'Istituto Superiore di Sanità
#9
of 17 outputs
Altmetric has tracked 25,382,440 research outputs across all sources so far. This one is in the 21st percentile – i.e., 21% of other outputs scored the same or lower than it.
So far Altmetric has tracked 279 research outputs from this source. They receive a mean Attention Score of 3.3. This one is in the 36th percentile – i.e., 36% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 359,549 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 29th percentile – i.e., 29% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 17 others from the same source and published within six weeks on either side of this one. This one is in the 35th percentile – i.e., 35% of its contemporaries scored the same or lower than it.