European Reference Network for Rare Vascular Diseases (VASCERN) position statement on cerebral screening in adults and children with hereditary haemorrhagic telangiectasia (HHT)

Overview of attention for article published in Orphanet Journal of Rare Diseases, June 2020

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Almost 10% of patients with Hereditary Haemorrhagic #Telangiectasia (HHT) have cerebral #vascularmalformations with potentially serious consequences. Read our Position Statement on Cerebral Screening for HHT here ➡ https://t.co/UkQe3RcENd #rarediseases #

25 Sep 2023

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Is cerebral screening essential for HHT patients? The HHT-WG statement on cerebral #screening offers an evidence-based framework for informed #discussions between healthcare providers and #patients on this topic. Read more ➡️ https://t.co/jbH3163iD9 #A

03 Nov 2022

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RT @kanachan2020: It is reported that about 10% of HHT patients have brain AVMs. European Reference Network for Rare Vascular Diseases (VAS…

10 Aug 2020

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Top story: European Reference Network for Rare Vascular Diseases (VASCERN) position statement on cerebral screening in adults and children with hereditary haemorrhagic telangiectasia (HHT) | Orphanet Journal of Rare Dis… https://t.co/dxN4F8LgQi, see more h

10 Aug 2020

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