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When Does Therapeutic Misconception Affect Surrogates’ or Subjects’ Decision Making about Whether to Participate in Dementia Research?

Overview of attention for article published in The AMA Journal of Ethic, July 2017
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Title
When Does Therapeutic Misconception Affect Surrogates’ or Subjects’ Decision Making about Whether to Participate in Dementia Research?
Published in
The AMA Journal of Ethic, July 2017
DOI 10.1001/journalofethics.2017.19.7.nlit1-1707
Pubmed ID
Authors

Laura B Dunn, Barton W Palmer

Abstract

"Therapeutic misconception" (TM) refers to inappropriate assumptions and beliefs on the part of research participants regarding key distinctions between the purpose, methods, intended benefits, and potential disadvantages of research compared to those of clinical care. Despite an extensive literature describing TM across varied types of research and populations, minimal work has addressed TM in the context of dementia research. This is a serious gap, for several reasons: people with dementia are at significant risk of diminished capacity; surrogate decision makers are typically asked to provide consent on behalf of the person with dementia; and available treatments for dementia are quite limited. More research is needed on the prevalence, nature, and impact of TM in the context of clinical dementia research.

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Mendeley readers

The data shown below were compiled from readership statistics for 20 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 20 100%

Demographic breakdown

Readers by professional status Count As %
Lecturer > Senior Lecturer 2 10%
Other 2 10%
Student > Master 2 10%
Student > Doctoral Student 1 5%
Professor 1 5%
Other 3 15%
Unknown 9 45%
Readers by discipline Count As %
Medicine and Dentistry 5 25%
Psychology 3 15%
Mathematics 1 5%
Social Sciences 1 5%
Biochemistry, Genetics and Molecular Biology 1 5%
Other 0 0%
Unknown 9 45%