↓ Skip to main content

Remodeling an existing rare disease registry to be used in regulatory context: Lessons learned and recommendations

Overview of attention for article published in Frontiers in Pharmacology, September 2022
Altmetric Badge

About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • Good Attention Score compared to outputs of the same age (77th percentile)
  • High Attention Score compared to outputs of the same age and source (93rd percentile)

Mentioned by

news
1 news outlet

Citations

dimensions_citation
4 Dimensions

Readers on

mendeley
13 Mendeley
You are seeing a free-to-access but limited selection of the activity Altmetric has collected about this research output. Click here to find out more.
Title
Remodeling an existing rare disease registry to be used in regulatory context: Lessons learned and recommendations
Published in
Frontiers in Pharmacology, September 2022
DOI 10.3389/fphar.2022.966081
Pubmed ID
Authors

Marina Mordenti, Manila Boarini, Fabio D’Alessandro, Elena Pedrini, Manuela Locatelli, Luca Sangiorgi

Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 13 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 13 100%

Demographic breakdown

Readers by professional status Count As %
Researcher 3 23%
Student > Ph. D. Student 2 15%
Unspecified 1 8%
Professor 1 8%
Student > Master 1 8%
Other 1 8%
Unknown 4 31%
Readers by discipline Count As %
Medicine and Dentistry 2 15%
Social Sciences 2 15%
Unspecified 1 8%
Nursing and Health Professions 1 8%
Unknown 7 54%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 7. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 07 June 2023.
All research outputs
#4,447,824
of 23,957,596 outputs
Outputs from Frontiers in Pharmacology
#2,018
of 17,620 outputs
Outputs of similar age
#92,376
of 439,023 outputs
Outputs of similar age from Frontiers in Pharmacology
#103
of 1,567 outputs
Altmetric has tracked 23,957,596 research outputs across all sources so far. Compared to these this one has done well and is in the 80th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 17,620 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.1. This one has done well, scoring higher than 88% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 439,023 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 77% of its contemporaries.
We're also able to compare this research output to 1,567 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 93% of its contemporaries.