Title |
Moving from Patient Advocacy to Partnership: A Long and Bumpy Road
|
---|---|
Published in |
The Patient - Patient-Centered Outcomes Research, January 2017
|
DOI | 10.1007/s40271-017-0216-1 |
Pubmed ID | |
Authors |
Durhane Wong-Rieger |
Abstract |
Real-life experiences of grassroots patient organizations across a variety of diseases, countries and contexts have been used to develop a four-mode framework of the transition from patient advocacy to partnership, defined by one axis as individual versus collective action and the other axis as activities 'outside' or 'inside' the system. The four quadrants are labeled as advocacy, activism, reform and broker, and engagement is further refined by whether the participation is 'pushed' by the group or 'pulled' by the system. There are many examples of patient advocacy groups transitioning through the four quadrants; however, depending on other factors of culture, opportunity and their own preferences, groups may work primarily through one or two quadrants. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Canada | 6 | 32% |
United Kingdom | 2 | 11% |
New Zealand | 2 | 11% |
United States | 1 | 5% |
Unknown | 8 | 42% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 15 | 79% |
Practitioners (doctors, other healthcare professionals) | 2 | 11% |
Science communicators (journalists, bloggers, editors) | 1 | 5% |
Scientists | 1 | 5% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 22 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 5 | 23% |
Student > Ph. D. Student | 3 | 14% |
Student > Doctoral Student | 2 | 9% |
Student > Postgraduate | 2 | 9% |
Researcher | 2 | 9% |
Other | 3 | 14% |
Unknown | 5 | 23% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 4 | 18% |
Nursing and Health Professions | 4 | 18% |
Arts and Humanities | 3 | 14% |
Engineering | 2 | 9% |
Medicine and Dentistry | 1 | 5% |
Other | 1 | 5% |
Unknown | 7 | 32% |