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Moving from Patient Advocacy to Partnership: A Long and Bumpy Road

Overview of attention for article published in The Patient - Patient-Centered Outcomes Research, January 2017
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (87th percentile)
  • Good Attention Score compared to outputs of the same age and source (66th percentile)

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19 X users
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2 Facebook pages

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22 Mendeley
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Title
Moving from Patient Advocacy to Partnership: A Long and Bumpy Road
Published in
The Patient - Patient-Centered Outcomes Research, January 2017
DOI 10.1007/s40271-017-0216-1
Pubmed ID
Authors

Durhane Wong-Rieger

Abstract

Real-life experiences of grassroots patient organizations across a variety of diseases, countries and contexts have been used to develop a four-mode framework of the transition from patient advocacy to partnership, defined by one axis as individual versus collective action and the other axis as activities 'outside' or 'inside' the system. The four quadrants are labeled as advocacy, activism, reform and broker, and engagement is further refined by whether the participation is 'pushed' by the group or 'pulled' by the system. There are many examples of patient advocacy groups transitioning through the four quadrants; however, depending on other factors of culture, opportunity and their own preferences, groups may work primarily through one or two quadrants.

X Demographics

X Demographics

The data shown below were collected from the profiles of 19 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 22 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 22 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 5 23%
Student > Ph. D. Student 3 14%
Student > Doctoral Student 2 9%
Student > Postgraduate 2 9%
Researcher 2 9%
Other 3 14%
Unknown 5 23%
Readers by discipline Count As %
Psychology 4 18%
Nursing and Health Professions 4 18%
Arts and Humanities 3 14%
Engineering 2 9%
Medicine and Dentistry 1 5%
Other 1 5%
Unknown 7 32%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 13. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 12 April 2017.
All research outputs
#2,696,150
of 24,325,299 outputs
Outputs from The Patient - Patient-Centered Outcomes Research
#76
of 557 outputs
Outputs of similar age
#55,207
of 425,964 outputs
Outputs of similar age from The Patient - Patient-Centered Outcomes Research
#4
of 9 outputs
Altmetric has tracked 24,325,299 research outputs across all sources so far. Compared to these this one has done well and is in the 88th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 557 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.8. This one has done well, scoring higher than 86% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 425,964 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 87% of its contemporaries.
We're also able to compare this research output to 9 others from the same source and published within six weeks on either side of this one. This one has scored higher than 5 of them.