A Systematic Review of Approaches for Engaging Patients for Research on Rare Diseases

Overview of attention for article published in Journal of General Internal Medicine, July 2014

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In the top 25% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (92nd percentile)
High Attention Score compared to outputs of the same age and source (83rd percentile)

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blogs: 2 blogs
twitter: 12 X users

facebook: 1 Facebook page

Citations

dimensions_citation: 108 Dimensions

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mendeley: 139 Mendeley

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So far, Altmetric has seen 2 posts from 2 blogs.

Findacure workshop: “How rare disease patient groups can work with researchers”

BHD Research, 01 Jul 2016

Although collectively, rare diseases affect an estimated 6 to 8 per cent of the EU population (EURORDIS), the low prevalence of…

Findacure workshop: “How rare disease patient groups can work with researchers”

Birt-Hogg-Dubé Syndrome, 01 Jul 2016

Although collectively, rare diseases affect an estimated 6 to 8 per cent of the EU population (EURORDIS), the low prevalence of…

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