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Quality of life and behavioral functioning in Dutch pediatric patients with hereditary spherocytosis

Overview of attention for article published in European Journal of Pediatrics, April 2014
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Title
Quality of life and behavioral functioning in Dutch pediatric patients with hereditary spherocytosis
Published in
European Journal of Pediatrics, April 2014
DOI 10.1007/s00431-014-2299-1
Pubmed ID
Authors

Myra Teunissen, Channa T. Hijmans, Marjon H. Cnossen, Madelon B. Bronner, Martha A. Grootenhuis, Marjolein Peters

Abstract

The objective of this study was to evaluate health-related quality of life (HRQoL) and behavioral functioning in pediatric patients with hereditary spherocytosis (HS). A cross-sectional study was conducted in 132 Dutch children and adolescents with HS and aged 8-18 years of whom 48 underwent splenectomy prior to the study. HRQoL was assessed using the KIDSCREEN-27, and behavioral functioning was evaluated using the strength and difficulties questionnaire (SDQ). Scores of pediatric patients with HS were compared to a Dutch norm population. Additionally, the effects of three factors were assessed: fatigue, self-image, and parents' perceived vulnerability (measured with the checklist individual strength, the self-perception profile for children and adolescents, and the child vulnerability scale). Both unsplenectomised and splenectomised pediatric patients reported lower HRQoL on the domain physical well-being (KIDSCREEN-27) compared to Dutch peers. For behavioral functioning, parents of both groups reported more emotional problems (SDQ) compared to the norm population. Pediatric patients with lower scores on physical well-being experienced more fatigue. The patients' perceived social acceptance and parents' perceived vulnerability appeared as determinants of emotional problems.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 44 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United States 1 2%
Unknown 43 98%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 7 16%
Student > Master 6 14%
Student > Postgraduate 5 11%
Student > Doctoral Student 4 9%
Student > Ph. D. Student 4 9%
Other 7 16%
Unknown 11 25%
Readers by discipline Count As %
Medicine and Dentistry 13 30%
Psychology 7 16%
Veterinary Science and Veterinary Medicine 2 5%
Computer Science 2 5%
Nursing and Health Professions 2 5%
Other 3 7%
Unknown 15 34%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 12 September 2014.
All research outputs
#18,378,085
of 22,763,032 outputs
Outputs from European Journal of Pediatrics
#3,104
of 3,686 outputs
Outputs of similar age
#147,152
of 203,767 outputs
Outputs of similar age from European Journal of Pediatrics
#29
of 46 outputs
Altmetric has tracked 22,763,032 research outputs across all sources so far. This one is in the 11th percentile – i.e., 11% of other outputs scored the same or lower than it.
So far Altmetric has tracked 3,686 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.6. This one is in the 6th percentile – i.e., 6% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 203,767 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 14th percentile – i.e., 14% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 46 others from the same source and published within six weeks on either side of this one. This one is in the 4th percentile – i.e., 4% of its contemporaries scored the same or lower than it.