#Raredisease #patient registries are key to provide #evidencebased #data to advance #diagnosis & treatment @Orphanet https://t.co/uZSz7HQIIW https://t.co/Z1TSYE6jdo
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1,075 followers
RT @aHUSUKvoice: This report about #aHUS Registry was about 512 patients https://t.co/ej7J5rpBNX there are now approaching 3 times that num…
815 followers
This report about #aHUS Registry was about 512 patients https://t.co/ej7J5rpBNX there are now approaching 3 times that number in the study
186 followers
RT @RealStephTanner: Thank God #Eculizumab (#Soliris) was approved or my bro @SlopJockey may not be alive today. Tomorrow is @aHUS24Sept…