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Patients' health-related quality-of-life and health state values for motor neurone disease/amyotrophic lateral sclerosis

Overview of attention for article published in Quality of Life Research, August 2003
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • Good Attention Score compared to outputs of the same age (70th percentile)

Mentioned by

policy
2 policy sources

Readers on

mendeley
40 Mendeley
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Title
Patients' health-related quality-of-life and health state values for motor neurone disease/amyotrophic lateral sclerosis
Published in
Quality of Life Research, August 2003
DOI 10.1023/a:1025052609818
Pubmed ID
Authors

C. Green, G. Kiebert, C. Murphy, J.D. Mitchell, M. O'Brien, A. Burrell, P.N. Leigh

Abstract

Motor neurone disease (MND) has a severe impact on patient quality of life, especially in later stages of the disease. This study assesses the health-related quality of life (HRQL) of MND patients, and for the first time elicits health state values from patients for their present health state. A structured interview was conducted with 77 patients. Patients completed a disease specific health status measure (ALSAQ-40), a generic health status measure (EuroQol EQ-5D), a visual analogue scale (VAS) and a standard gamble (SG) exercise. The ALSAQ-40 was sensitive to disease severity. Patients' mean VAS rating of their own health ranged from 0.74 for stage 1 (early) disease severity (n = 15), to 0.37 for stage 4 (late stage) disease severity (n = 19). Utilities elicited via SG varied from a mean of 0.79 for stage 1 disease severity to a mean of 0.45 for stage 4 disease severity. The EQ-5D derived single index ranged from a mean of 0.63 for stage 1 disease severity to a mean of -0.01 for stage 4 disease severity. This study demonstrates that it is feasible and practical to obtain health state values from MND patients and it provides evidence that patients place a high value on their HRQL, even in cases where health status is very poor.

Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 40 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 1 3%
United States 1 3%
Unknown 38 95%

Demographic breakdown

Readers by professional status Count As %
Student > Master 8 20%
Researcher 6 15%
Student > Ph. D. Student 5 13%
Student > Bachelor 4 10%
Other 4 10%
Other 8 20%
Unknown 5 13%
Readers by discipline Count As %
Medicine and Dentistry 16 40%
Nursing and Health Professions 3 8%
Social Sciences 3 8%
Biochemistry, Genetics and Molecular Biology 2 5%
Economics, Econometrics and Finance 2 5%
Other 10 25%
Unknown 4 10%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 6. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 05 July 2023.
All research outputs
#5,446,629
of 25,373,627 outputs
Outputs from Quality of Life Research
#503
of 3,062 outputs
Outputs of similar age
#9,542
of 53,063 outputs
Outputs of similar age from Quality of Life Research
#2
of 2 outputs
Altmetric has tracked 25,373,627 research outputs across all sources so far. Compared to these this one has done well and is in the 75th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,062 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.1. This one has done well, scoring higher than 81% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 53,063 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 70% of its contemporaries.
We're also able to compare this research output to 2 others from the same source and published within six weeks on either side of this one.