The case for open science: rare diseases

RT @itinerare_uzh: Research in the field of #raredisease struggles with insufficient data. Open Science could be a potential solution to th…

RT @itinerare_uzh: Research in the field of #raredisease struggles with insufficient data. Open Science could be a potential solution to th…

Research in the field of #raredisease struggles with insufficient data. Open Science could be a potential solution to this problem by making data openly available. Rubinstein et al. present a roadmap for #openscience in rare diseases. Take a look here🔎: …

RT @PLOS: Search the latest in #RareDisease research across all PLOS journals, always #OpenAccess to all: https://t.co/UKkGu68RUX #RareDise…

RT @PLOS: For #RareDiseaseDay 2022, we invite you to check out an #OpenAccess article from JAMIA Open outlining how #OpenScience practices…

RT @PLOS: Search the latest in #RareDisease research across all PLOS journals, always #OpenAccess to all: https://t.co/UKkGu68RUX #RareDise…

RT @PLOS: For #RareDiseaseDay 2022, we invite you to check out an #OpenAccess article from JAMIA Open outlining how #OpenScience practices…

RT @PLOS: For #RareDiseaseDay 2022, we invite you to check out an #OpenAccess article from JAMIA Open outlining how #OpenScience practices…

Search the latest in #RareDisease research across all PLOS journals, always #OpenAccess to all: https://t.co/UKkGu68RUX #RareDiseaseDay #OpenScience

For #RareDiseaseDay 2022, we invite you to check out an #OpenAccess article from JAMIA Open outlining how #OpenScience practices have provided solutions to many of the challenges faced within #RareDisease research - https://t.co/EhoEgpwIHF https://t.co/…

RT @MonarchInit: Open Science can help accelerate research about rare diseases. Find out more about the possibilities at https://t.co/YQbKI…

RT @MonarchInit: Open Science can help accelerate research about rare diseases. Find out more about the possibilities at https://t.co/YQbKI…

RT @GA4GH: "The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly share…

RT @GA4GH: "The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly share…

RT @GA4GH: "The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly share…

RT @GA4GH: "The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly share…

"The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly shared. The value of Open Science is nowhere more important and appreciated than in the rare disease (RD) community."

RT @MonarchInit: Open Science can help accelerate research about rare diseases. Find out more about the possibilities at https://t.co/YQbKI…

RT @MonarchInit: Open Science can help accelerate research about rare diseases. Find out more about the possibilities at https://t.co/YQbKI…

Open Science can help accelerate research about rare diseases. Find out more about the possibilities at https://t.co/YQbKI1fGeD #RareDiseaseDay #RareDiseaseDay2021 #OpenScience

Good to see recognition of the importance of open science for progress in rare diseases.

RT @ontowonka: To all the #raredisease #patients & myriad of #clinicians, #researchers, & #informaticians;THANK YOU for #datasharing. #open…

RT @ontowonka: To all the #raredisease #patients & myriad of #clinicians, #researchers, & #informaticians;THANK YOU for #datasharing. #open…

RT @ontowonka: To all the #raredisease #patients & myriad of #clinicians, #researchers, & #informaticians;THANK YOU for #datasharing. #open…

RT @drseb_: #RareDiseaseDay2021 #OpenScience https://t.co/jLthagtAPN

RT @ontowonka: To all the #raredisease #patients & myriad of #clinicians, #researchers, & #informaticians;THANK YOU for #datasharing. #open…

To all the #raredisease #patients & myriad of #clinicians, #researchers, & #informaticians;THANK YOU for #datasharing. #openscience & #collaboration are critical to #diagnosis & #care!

#RareDiseaseDay2021 #OpenScience

RT @crb_uu: #OpenScience allows research and medical management to progress faster. There are initiatives within the #RareDisease community…

RT @crb_uu: #OpenScience allows research and medical management to progress faster. There are initiatives within the #RareDisease community…

#OpenScience allows research and medical management to progress faster. There are initiatives within the #RareDisease community and recommendations for advancing open science. Published in JAMIA Open: https://t.co/UHlMx6Uvj6 #genetics #genomics https://…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @drseb_: Great shoutout to our work in the monarch initiative and the HPO project! https://t.co/qkp4FSjUwJ

Great shoutout to our work in the monarch initiative and the HPO project!

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

The case for open science: rare diseases https://t.co/QFdZkZ1GDa

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

RT @pnrobins: The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value…

The premise of Open Science is that research and medical management will progress faster if data are openly shared. The value of Open Science is nowhere more important and appreciated than in the rare disease community. https://t.co/oO1YjXKg4o @hp_ontol…

RT @RickyPo: The case for open science: rare diseases https://t.co/xCK6Z5Myr4

The case for open science: rare diseases https://t.co/xCK6Z5Myr4

"The value of Open Science is nowhere more important and appreciated than in the rare disease (RD) community. " https://t.co/UzuOz0ZKei https://t.co/NLsY36PjP0

RT @ontowonka: It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease d…

👏👏👏

Strong work @ontowonka !!

RT @ontowonka: It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease d…

Congratulations on the manuscript!

case for open science: rare diseases | JAMIA Open | Oxford Academic https://t.co/18JeMyQKBX

case for open science: rare diseases | JAMIA Open | Oxford Academic https://t.co/i5Ls92UvE3

Newly available in #JAMIA Open, an article on the value of Open Science within the rare disease (RD) community describes how the RD community has adopted the core pillars of Open Science to promote care and research for RD patients. Access it today! ht…

The case for open science: rare diseases

RT @ontowonka: It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease d…

RT @ontowonka: It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease d…

RT @ontowonka: It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease d…

RT @ontowonka: It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease d…

RT @ontowonka: It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease d…

RT @ontowonka: It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease d…

It is an honor to have contributed to this manuscript, an exemplar of the value of #OpenScience - here to aid #RareDisease diagnostics, discovery, & #translationalscience. Make science go better, faster. #ASAPbio @MonarchInit @hp_ontology https://t.…

RT @pnrobins: It was an honor and pleasure to work with this great team of authors led by Yaffa and Melissa - @MonarchInit @hp_ontology We…

RT @figgyjam: #OpenScience #RareDisease https://t.co/Jx30oMowcv

RT @pnrobins: It was an honor and pleasure to work with this great team of authors led by Yaffa and Melissa - @MonarchInit @hp_ontology We…

#OpenScience #RareDisease

It was an honor and pleasure to work with this great team of authors led by Yaffa and Melissa - @MonarchInit @hp_ontology We attempted to provide a comprehensive overview of the role of Open Science for RD research and clinical care: https://t.co/npVUKP…

RT @ClementYChow: Open science seems like a n brainer for rare diseases. It'd be great if all rare disease foundations were actually in it…

Open science seems like a n brainer for rare diseases. It'd be great if all rare disease foundations were actually in it to solve the disease rather than the glory. https://t.co/H3ButxKY5p