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When Disability Is Defined by Behavior, Outcome Measures Should Not Promote “Passing”

Overview of attention for article published in AMA Journal of Ethics, July 2021
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217 tweeters
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4 Facebook pages
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1 Wikipedia page

Citations

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1 Dimensions

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12 Mendeley
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Title
When Disability Is Defined by Behavior, Outcome Measures Should Not Promote “Passing”
Published in
AMA Journal of Ethics, July 2021
DOI 10.1001/amajethics.2021.569
Pubmed ID
Abstract

When disability is defined by behavior, researchers and clinicians struggle to identify appropriate measures to assess clinical progress. Some choose the reduction or elimination of diagnostic traits, implicitly defining typical appearance as the goal of service provision. Such an approach often interferes with more meaningful, person-centered goals; causes harm to people with disabilities; and is unnecessary for dealing with traits that are intrinsically harmful or personally distressing, such as self-injury. Disability stakeholders should reevaluate outcome measures that seek to eliminate disability-related traits that are stigmatized but not harmful. Using autism and the emergent neurodiversity movement as a case study, this article explores ethical challenges in selecting outcome measures in behaviorally defined disability diagnoses.

Twitter Demographics

The data shown below were collected from the profiles of 217 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 12 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 12 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 4 33%
Student > Bachelor 2 17%
Student > Ph. D. Student 2 17%
Student > Doctoral Student 1 8%
Unknown 3 25%
Readers by discipline Count As %
Social Sciences 3 25%
Psychology 1 8%
Nursing and Health Professions 1 8%
Sports and Recreations 1 8%
Arts and Humanities 1 8%
Other 1 8%
Unknown 4 33%